Endometriosis Thread 3: Place for EndoWarriors

[MisCalculus]

Sa mga nagtatanong po about Visanne. I can say na it is effective in managing the pain, and the whole disease per se... Unfortunately for me, kaka-extend ko / or kaka delay ko ng surgery ko umabot na ko ng 1 year from taking Visanne, na originally 6 months lang dapat. Magaling naman ang OB ko, si Dra. Leedah Nisperos pero sa tingin ko naging complacent kami ng konti sa status ko. So after 1 year of taking Visanne, i developed breast cyst (multiple cyst on both breast) ang sad talaga.

So, Visanne is ok but I suggest don't take it longer that 6 months. Maigi din na in between 6 months magpa breast ultrasound din to make sure.

Off meds or any pills na ko for almost 6 months na, and thank God, very tolerable na yung pain during PMS, and hindi na lumaki pa yung cyst ko (maintain at 4.5 cm). I hope my condition will improve pa. I just need to have a healthy lifestyle (ang hirappp)

[r0ckxann3]

Sis, any side effects on taking Visanne?

[r0ckxann3]

Hi Sis,

Magte-take ako ng Visanne para lumiit or sana mawala yung cyst ko sa ovary at myomas ko. 3months ako pinapainum ng OB and sana magwork sakin kasi ayoko ng GnRH .Trying to conceive kami ni hubby for 7months na.. sana after ko magvisanne mabuntis ako agad Baby Dust to all of us..

[ember_sky]

Hello! Share ko lang. Last April, naoperahan ako because of Dermoid Cyst and Endometriosis csyt.
This week, nagpacheck ako sa doctor mukhang bumabalik daw yung endometriosis ko based sa ultrasound. GNRH yung nirerecommend nya for 3 months. ang mahal pala nito 

[r0ckxann3]

Hi Sis,

April ka naoperahan diba?paanu nalaman ng OB mo na parang bumabalik yung endometriosis mo?Yung friend ko naoperahan netong May lang then 2months pa syang pahinga sa bahay.

[handlewithcare]

Hello mga sisses! May alam ba kayong OB-Gyne na specialist sa endometriosis? 8 days nang sumasakit lower left abdomen ko. I'm taking Visanne for 2 months na. Twice na din akong na-ER since last week. Nakaka-frustrate lang na hindi lahat ng OB-Gyne ay alam kung paanong i-handle ang ganitong sakit. Gusto ko sana yung expert talaga. Thanks in advance sa makakapag-refer.

[kccllj]

Hi sissies! Just curious, what were the usual symptoms of Endometriosis? Yung first hand experience niyo? Since I started having period lagi ako nag-dysmenorrhea. Normal naman ang menstrual period and cycle ko, it's just that during my first day, dun sobrang sakit. Then after my first day, wala na. Tolerable naman yung pain but i still have to take oral pain reliever. I already went to 2 OBs na and they said menstrual cramps are just normal and mawawala lang daw pag nag-baby na ako. I don't know it's just a myth or what but I just believed on what my OB said. I was in college back then and wala naman ginawang procedure yung OB ko. But just now, my first day of period, sobrang sakit as in hindi na tolerable. I had to go to the ER and they injected me pain reliever. Naka schedule na rin ako for check-up with a new OB.

[ember_sky]

Hi Sis,

April ka naoperahan diba?paanu nalaman ng OB mo na parang bumabalik yung endometriosis mo?Yung friend ko naoperahan netong May lang then 2months pa syang pahinga sa bahay.

Hi Sis! yes april lang ako naoperahan. Tapos May 24 follow up check up sa OB ko, nung ni ultra sound niya ako ayun sabe niya. active pa din daw endo ko tapos may mga tumutubong cyst ulit. 

[momlory]

Hello! Share ko lang. Last April, naoperahan ako because of Dermoid Cyst and Endometriosis csyt.
This week, nagpacheck ako sa doctor mukhang bumabalik daw yung endometriosis ko based sa ultrasound. GNRH yung nirerecommend nya for 3 months. ang mahal pala nito 

sis nakikita ba yung endometriosis based sa ultrasound? TVS po ba ito?

[chinitaida]

Hi Sis,

Magte-take ako ng Visanne para lumiit or sana mawala yung cyst ko sa ovary at myomas ko. 3months ako pinapainum ng OB and sana magwork sakin kasi ayoko ng GnRH .Trying to conceive kami ni hubby for 7months na.. sana after ko magvisanne mabuntis ako agad Baby Dust to all of us..

HI!


Share ko story ko. 3 years ago naoperahan ako sa endometriosis. I got married, though LDR< wala nangyari. so sa sobrang complacent ko, after 2 years nagpa check up ako, bumalik nanaman sya. so kahit ano ginawang pills whatsoever, wala nangyayari. This feb, i decided to see an infertility specialist in St. Lukes. Straightfoward, sinabi na IVF is the way. considering my age and situation. Kaso malaki cysts ko sa ovaries and myomas. Hence, Gnrh injection every month cost 8k pesos. 3rd month, lumiit cysts ko sa ovaries and myoma. I have to say, Gnrh helped a lot sa pagpapaliit ng cysts and myoma. Side effects lang, hot flashes since naka pseudo menopause ka nito...bones and joint pains.

If meron kayo questions abt Gnrh, please ask away. Willing to help those who wants to get pregnant

[kccllj]

Hi sissies! The excruciating pain that I'm experiencing during periods was not because of endometriosis. I just had check-up with my OB, had transV and found out it was PCOS pala

[K18espi]

Sis, any side effects on taking Visanne?

Hi Sis, been diagnosed with endometriosis last April 2016. Yung side effects sakin ng visanne was lumaki yung boobs ko, and the worst part is yung depression. Pero after taking 6 months, as per my OB, lumiit naman daw yung cyst ko. Pero she advised me to continue taking pills lalo na wala pa kong balak magka-baby. Nagpareseta ko ng bagong pills, medyo masakit kasi sa bulsa yung visanne

[mustard]

hi mga sis,

update lang ako ng endo ko.... nag tatake ako ng depo for almost a year now... continuous lang every 2 months....
wala na bang ibang alternative medicine? para sa kalagayan natin... ?

[mustard]

hi mga sis,
ano ng balita sainyo?

[Doreen18]

Hello po. Isang taon ko na po iniinda ang sakit ng endo ko, ang tanging solusyon n binigay ng ob ay pills para tumigil ang mens at tanggalin ang matres..ask ko lang po meron po ba tayong doctor dito s pinas na nagpapractice ng procedure na ginagawa ni Dr.Seckin ?? (gynecologist from Turkey)..
Nabasa ko lang po s mga blogs tungkol s kanya.
Mejo nakakadepress na po ang bwan bwan n pagsakit na di ko na matiis at iniinuman ko ng buscopan venus, which i know di po maganda s katawan. 
May mga specialista po ba ng endo dto satin? Pede ko po malaman kung saang hospital? Thank u po.😊

[Maiahmaya]

Hi mga Sis.I'm just new sa forum though i have read some msgs here before about endo.Naisip kong mag register to share my endo stories.
I was diagnose for endo and myoma wayback 2011.I was in terrible pain monthly kc normal ang cycle ko (every 27 to 28 days ussually).I tried a lot of herbal medicines as well as pills na nireseta ng ob gyne ko.
Lahat na yta ng herbal,also accupuncture nasubukan ko na. But the pain is still there.Around April this year when my husband bought me a book about endometrioses and dun ko nalaman about importance of cleansing and detox. I am about to attend the 3 day program but unfortunately it was cancelled kc konti yta participants.I guess hndi [textspeak!] masyado pa alam kung gaano ka importante ang cleasing to start the healing of our body.
Good thing is that one of the assistant of the Doctor who is helping to conduct the said program give me the list of the pre'cleansing program.It is included the juicing of fresh turmeric mixed into juice of 6 kalamansi.I drink it every morning in an empty stomache.I started it a week before my period at i was amazed nung dumating period ko though there is little pain pro talagang tolerable.At for the first time after few years na hindi ako nag take ng pain reliever.Hndi ko alam kung pano ngyari.I started to shift into organic shampoo,toothpaste,etc last April.Kasi yung paraben and sls daw ay nakakadagdag sa estrogen which causes yta to feed endo.Also i started juicing beetroot,turmeric,apple,celery,kalamansi (or lemon) and 1 green leafy vegetable since March.Parang yun ang breakfast ko.I took usana suplement since November last year.Though it helps kc na notice ko na from 3 to 5 days period naging  1.5 to 2 days na [textspeak!] and the rest was small spotting.The pain also stops in 2nd day.So laking tulong na yun.But when i started the turmeric and kalamansi only last month,i was really amazed na yung pain ay naging little discomfort na [textspeak!] at nakayanan ko.I am having my 2nd day of period now at prang [textspeak!] [textspeak!].I praise God for i called it miracle.
I share this kc alam ko ang struggle with endo and hoping it can help.I will be going for an ultrasound in 2 weeks to see if nawala ba or nagkarun ng decrease ang endo ko. But this story i share hoping it can help somebody out there to manage the pain.
God bless us all.
(Ofcourse,prayer is always very important for my journey of my healing.So keep on holding on to the Lord)

[momlory]

^sis sa ultrasound po ba nakikita yung endo? Hindi po ba sa hsg?

[crzysxycl]

^^balitaan mo kami sis. Sana good news.

^yes sa ultrasound sis.

[crzysxycl]

^hi sis. anong brang ng turmeric tea tini-take mo? dami na kasing brands sa market nito. not sure kung anong ok. thanks!

[momlory]

I'm still continuing my intake of Visanne tapos sa lunch or dinner, i drink turmeric powder tea. It's a good thing that Turmeric tea preparations are abundantly available in the market so it's less of a hassle to purchase and prep at home. Sa October pa next ultrasound ko, sana may effect na. I'm keeping my fingers crossed.

Sis ano pong ultrasound ito tvs po ba?