Endometriosis Thread 3: Place for EndoWarriors

[crzysxycl]

^Hi sis! Yes, sana kayanin ng normal delivery. Wala rin magagawa kung kailangan i-CS pero pinaglalakad na ako ng OB ko ngayon para bumaba at pumwesto na raw si baby. Musta na sis, nag spotting ka pa rin ba?

Pls pray for me sisses! Thank you!

[mustard]

Hindi na ako Nag spotting ngayon sis.... pero madalas ko padin maramdaman ang pagkirot ng puson ko.....

Pray lang sis.... kayang kaya mo yan para kay baby...
Isasama din kita palagi sa prayers ko

[crzysxycl]

^Salamat sis! Ay ganun ba, hassle talaga pag may endo no. Sana nga talagang magkaron na ng solusyon sa problema natin.

[princess20]

Nakakalungkot wala pang solution sa sakit na to. We are TTC but my doctor gave me visanne. Sana after 4 months pwede na kami makagawa.

[artsymomtobe]

buti nalang OB ko never sinabi yun, i even got pregnant after 3 months workup with her. pero kasi kung treatment ang gagawin tapos gusto mapreggy, madedelay pa pagbubuntis so gaya ng OB ko, nagfocus sya sa pag conceive kasi as long as nagrerespond naman ovaries mo sa fertility meds, malaki chance mapreggy. also, yung sinabi ng OB mo na mapapahinga ka lang ng 9 months, pwede pa rin mawala endo nun since hindi nagkakamens. kahit naman din kasi ipaopera ang endo pwede rin bumalik diba. mas ok na mabuntis, may little bundle of joy ka na, pwede pa mawala endo mo.

Hi girls! Im a newbie here (was actually a silent reader for the past months), decided to join after finding out I have endo Hoping to get more info from your experiences and success stories

Sis crzysxycl, my hubby and I are on our first month of TTC, wanted to ask what happens during a "work up" and do you think everyone with endo needs it? Do I have to switch din agad to an OB specializing in infertility?

My current OB suggested kasi taking pills para daw muna para lumiit yung cyst (almost 5cm on right ovary), but she also mentioned that we can try to get pregnant muna and go back after 6 months if mahirapan magconceive. Im 24 btw, sorry may pagka noob pa about this and would appreciate your thoughts Thanks so much!

[crzysxycl]

^Hi sis! Based on my experience, during workup binibigyan ng fertility meds - clomiphene citrate (pampalaki ng eggs), minsan plus duphaston (pampakapit). After meds kailangan check ang ovulation, may ibang OB na pinapa follicle monitoring ang patient (transvaginal utz) meron din namang hindi, nagpapagamit lang ng ovulation predictor kit. Pag nakitang may eggs sasabihan kayo kung kelan dapat mag BD. In my case once makitang may eggs na enough ang sizes, I was given ovidrel shots na pampaputok naman ng eggs. Since puputok ang eggs in 12hrs, mas matitimingan ang BD.

Sa gaya nating may endo, mas mahirap daw kasi mapreggy kaya tingin ko lang sis mas ok kung sa infertility specialist pumunta. Iba kasi ang approach nila, IMO. Pero gaya ng sabi mo first month of ttc palang kayo, so pwede rin yung sinasabi ng OB mo na magtry muna kayo then balik nalang after 6 mos. Meron din naman kasing mga swerte na kahit may endo at walang workup nabubuntis. Nakakainggit sila, hehe. How long have you been married sis? Kami 4yrs married then nadiagnose endo ko March 2014, got preggy naman November 2015 after 3 months workup sa OB ko.

[artsymomtobe]

^ Wow, thanks for much for the detailed explanation crzysxycl! Married for 7 months pa lang kami sis. So far ang sabi lang samin ni OB is to BD every other day starting CD8, tinry ko rin mag BBT, crossing my fingers na we get lucky sa first try. Pero I told hubby na if negative kami this month, hanap na kami ng infertility specialist (haha ang atat ko). Scary din kasi yung mga endo stories na bigla na lang nagrurupture cyst nila, kaya gusto ko na rin sana magpaalaga before it gets too late.

Ang galing naman sis, buti nag respond ka agad sa meds kahit natagalan before you found out about your endo I saw in another thread that you just gave birth pala? CONGRATS!! I have a friend nga, before she got married she found out she had endo pero hindi nila pinansin, 3 months after her wedding she got pregnant na agad Pero buong pregnancy nya she was always bleeding and getting rushed sa ER because of the cyst. Buti na lang her baby survived.

[jnvillanueva]

Hello mga endo sisters! I'm new here. Im 27 years old and 2014 ako nadiagnose ng endo. Naoperahan an din ako last year June 2015, 8cm endo cyst ang natanggal sakin sa right ovary ko (pero nung nadiagnose ako bilateral ovaries ko may endo cyst kaso nagrupture ata yung sa left) plus 3 corpus luteum yung tinanggal sa left ovary ko. After that pinag take na ko ng visanne (progestin pills), ok naman for the first 3 consecutive months but sumunod na mga months nakakaramdam na ko ng menopausal symptoms which decided me to stop na yung pills. May latest Ultrasound says i have 2cm endo at my left ovary then polycystic naman yung sa right ovary at meron din akong adenomyous. Sabi nga ng sonologist lahat dawng sakit sinalo ko na.

Yung symptoms ko ngayon kahit after period eh sumasakit pa rin minsan puson ko or other parts ng abdomen ang sakit talaga. Minsan nahihirapan din ako huminga. Tapos constipated na naman ako, mukhang hindi na naman gumagalaw bituka ko dahil siguro sa adhesions

Meron ba ditong my endo sa ibang parts ng internal organs? Meron ako napanood sa healing galing na gumaling endo dahil sa healing oil? Kayo mga sis anong ritual nyo para macontrol yung endo nyo? desparada na ko gumaling

[artsymomtobe]

^Hi sis jnvilanueva, grabe pala yung no, kahit ipa-opera mo na bumabalik pa rin talaga sya Prayers for you sis!

May nabasa ako sabi good daw ang Bee Propalis para lumiit ang endo. I decided to try one from Ilog Maria, mga 2 weeks ko pa lang sya naiinom so di ko pa alam if effective talaga haha. I will know once magpacheckup ako uli sa end of month.

[crzysxycl]

^ Wow, thanks for much for the detailed explanation crzysxycl! Married for 7 months pa lang kami sis. So far ang sabi lang samin ni OB is to BD every other day starting CD8, tinry ko rin mag BBT, crossing my fingers na we get lucky sa first try. Pero I told hubby na if negative kami this month, hanap na kami ng infertility specialist (haha ang atat ko). Scary din kasi yung mga endo stories na bigla na lang nagrurupture cyst nila, kaya gusto ko na rin sana magpaalaga before it gets too late.

Ang galing naman sis, buti nag respond ka agad sa meds kahit natagalan before you found out about your endo I saw in another thread that you just gave birth pala? CONGRATS!! I have a friend nga, before she got married she found out she had endo pero hindi nila pinansin, 3 months after her wedding she got pregnant na agad Pero buong pregnancy nya she was always bleeding and getting rushed sa ER because of the cyst. Buti na lang her baby survived.

Hi sis! Sorry ngayon lang uli nakapag GT. Thank you, I'm grateful kasi hindi naman naka affect endo ko sa pregnancy ko although soft ang cervix ko the entire term kaya nag leave ako ng matagal from work. True sis may mga cases nga raw na nagrurupture ang cyst during pregnancy, dasal lang talaga lagi. Katakot cas ng friend mo, kakaloka pag may bleeding. Oo sis gora na sa infertility specialist, iba kasi approach nila. Yung previous OBs ko hindi IS, sa current ko na IS 3 months workup din kami tapos preggy na ako kaya nirerecommend ko talaga doc ko sa mga friends kon gusto magkababy or ttc.

[princess20]

^congrats sis!

I bought castor oil kanina, sana umok siya sa endometriosis at pcos ko.

[MisCalculus]

Hi sis! Sorry ngayon lang uli nakapag GT. Thank you, I'm grateful kasi hindi naman naka affect endo ko sa pregnancy ko although soft ang cervix ko the entire term kaya nag leave ako ng matagal from work. True sis may mga cases nga raw na nagrurupture ang cyst during pregnancy, dasal lang talaga lagi. Katakot cas ng friend mo, kakaloka pag may bleeding. Oo sis gora na sa infertility specialist, iba kasi approach nila. Yung previous OBs ko hindi IS, sa current ko na IS 3 months workup din kami tapos preggy na ako kaya nirerecommend ko talaga doc ko sa mga friends kon gusto magkababy or ttc.

Congrats sis crzysxy! grabeh parang kelan lang we were talking about possible solutions to relieve our pain and now you have given birth na

Hi jnvillanueva, wag mawalan ng pag-asa. Sabi nga "pain is real, so is hope". Madaling sabihin yan, but since were on the same plight i know how you feel.

Sis Princess, during the first months nung nadiagnosed ako, when i was experiencing pain almost everyday in 3 months, lagi din akong nagha-hot compress with castor oil (on my abdomen)
Sinasabayan ko din ng inom ng ginger tea, yung pinakulo talaga to relieved the pain.

I am not taking any meds for almost 4 months now, since nagkaron ako ng breast cysts (i was taking Visanne for almost a year).
For the past 3 months very insignificant yung nilaki ng endometrioma ko. From 3.7 naging 4.1 cm lang sya. I was advised to take Althea, alternative for Visanne, for the meantime pero parang nagdadalawang isip ako.

Sino na po dito ang nagtake ng Althea? Ano pong effect nito sa inyo? I was told na makakatulong din daw to eliminate my breast cysts but not during my first months of taking it.
Now, i'm scared again, the least that I need right now are additional bukols

I have plans naman na to have a surgery pag umabot na sa 5cm ang endo ko, almost kissing na daw kasi ang left and right ovaries ko. I'm fine with surgery, hindi naman aalisin ang right ovary ko, yung endometrioma lang talaga.
Tanggap ko naman, i just don't want additional complications pag nagtake pa ko ng mga pills.

[luimingrui]

Hi to all,
I also have endo, ask ko lang common ba o did you experience na ma-delay ang period, turned out maging irregular ka because of endo? I had my LMP last July 3, then July 29uli. This month of August I missed my period. Im hoping na maging positive sya at di lang delayed. But so far wala ako nararamdaman na symptoms except breast pain and constipated ako. Any insights po? Thanks a lot!

[HMisabelle]

^have you tested sis? Good luck!

[soblessed120814]

Yes po ginawa ko na syang mantainance.. kase sa endo everytime na magkakamens tayo possible na bumalik talaga siya. Since nagdidissolve siya ng blood clot maavoid siguro naten yung recurring endometrioma. Kaso nagstop ako for now kase im 6 weeks pregnant I also took royal jelly and vitex before kasabay ng serrapeptase.

[luimingrui]

^have you tested sis? Good luck!

I tested 1 day missed, negative pa sya. Try ko uli after a week.

[luimingrui]

Hello,

Aunt flow came 4 days late. 
Is there any vitamins or supplement ma-recommend nyo po?

[HMisabelle]

^aww. good luck on your new cycle, sis. my multivitamins is NOW daily vits. it's available at watsons. told my ob about it and she said i could continue taking it kasi may folic acid na.

[crzysxycl]

Thanks princess20. Sana magwork castor oil for you. Update mo kami sis.

MisCalculus, hi sis. Sorry now lang uli nakapag GT. Oo nga sis, parang kelan lang. Going 2 months na rin baby ko. Re althea, nag take ako nito sis, 2 or 3 months ata. I think nakatulong sya para lumiit at mawala cyst ko. Nag depo kasi ako July to Nov, pero I always had spotting kaya sabi ng dati ko OB mag althea ako. December nagpa TVS ako, may cyst pa both ovaries, lumiit pero konti lang. Then TVS again ng Feb, wala na yung sa left ko, then lumiit sa right ko - from 4cm naging 2cm nalang.

Although nung nagpapawork up ako, napansin ko iba iba ang basa ng sonologists sa SLMC, meron sa kanila ang sabi bilateral, meron din namang ang sabi sa right lang. Hinayaan ko lang kasi importante sa akin noon mapreggy ako. Hindi ko pa alam kelan ako uli magpapa TVS, pero yung operative record ko when I gave birth nakalagay normal both ovaries. Sana nga nawala na sya nung preggy ako.

[luimingrui]

Hello, sa lahat po ng successful na preggy na, please share some advices po what we could do aside dun sa mga sinabi ng OB natin. I have bilateral endo, left is 5cm at right is 4cm. Yung left endo ko is inside my ovary. I took visanne for 3 months and TVS shows no improvement. OB gave me another 6 months to TTC and suggest operation or injection na. Im 28 years old pa lang po. Need ko na talaga makabuo kasi Malaki na daw and if ever maoperahan ako baka oophorectomy na daw. Nakaka stress isipin, sana help nyo po ako.