Endometriosis Thread 3: Place for EndoWarriors

[krispygreen]

Thanks sis kim28 .. kakatakot lang kasi parang ang konti ng percentage ng nabubutis after battling endo compared to PCOS..or baka dahil mas madami din tlaga ang may PCOS compared to endo.

^^ ako sis VainDoll severe dysmenorrhea. Akala ko normal lang for me yung ganon pero dumating na sa point na minsan di nako nakakapasok kasi super painful and super lakas din ng AF. As in overnight pads lagi with tampons pa yun. So my officemate urge me to go to an OB and nag TVS ako then yun na nga, endometriosis . That was 4 years ago. For now cleared nako sa endo kasi nag undergo ako ng surgery last april. Hopefully hindi na muna sya bumalik and sana makabuo na kami before pa sya bumalik.

[kim28]

^ oo nga kami ni hubby ttc pa rin till now pero ibibigay din yan sa atin

[kim28]

this september after ng af ko babalik ako sa ob ko para pa check ang endo ko lately may pelvic pain na naman ako and twice na ako na almost 1week na delay nagiging irregular na mens ko.  last time sabi ni OB irregular mens di daw dahil sa date/cycle pwede din daw sa volume.  Ang AF ko 1 day lang talaga malakas  next day di na gaano kalakas then 3rd day pahabol na lang talaga. 

balitaan ko kayo akala ko nga preggy na ako kasi 5 days na naman delay ang AF ko.  sana mag improve na or nawala na nga ng tuluyan

[krispygreen]

Hi sis kim28 same na naman tayo..dumating na din AF ko and lately nag iirregular period ako kaya double stress pa kasi magkaka hope ka na BFP na yun pala irregular lang..last month 1.5 days lang AF ko this month naman AF came a week early..sana hindi connected sa endo tong satin sis..may tinatake ka bang meds?

[crzysxycl]

thanks sis sweet_cherry.

update lang sa endo ko: nagpa inject na ako ng depo nung july, 2 shots agad. then nung sumunod na months, 1 shot nalang binigay sa akin ni OB so nakaka 4 shots na ako in total. 2 more shots then mag pipills naman daw ako sabi ni OB para ma regulate ang cycle ko. nagbibleed din ako like you sis mustard.. pero pakonti konti lang, and sabi ni OB ko normal lang daw yun nung first shot ko, pero dapat daw ngayon wala na.. ewan ko bakit ganun, hindi naman nya sinabi sa akin pa. wala rin namang sinabing masama yun.

OB ko may endo rin dati pero napreggy sya, nawala raw endo nya noon dahil napreggy sya ng sunod sunod. pero ngayon parang meron nanaman daw dahil masakit nanaman puson nya pag meron sya.

ang hirap pala nitong endo, yung iba raw pwede maapektuhan ang tubes gaya ng isang patient ni OB, ang laki na raw kasi talaga nung endo and need ng operahan.

[mustard]

hi mga sis tagal kung hindi nakabalik sa thread dami na palang nag share..  ask ko lang sainyo kung may nagsabi naba sainyo na ob kung panu ba talaga gagaling ang endo?? sayang kasi kung magpapa-opera tapos babalik padin pala   , nakakastress naman pag dating sa gastosin...

[PrinsesaMJD]

@mustard
that's also my concern.

Hi mga sis, share lang.. Nagpaopera ako last june 2014 to remove the 5cm cyst sa left ovary ko. Unfortunately, pumutok na pala sya (i don't know if during or before the operation).
After 3months, eto nanaman ako, minsan may kumikirot sa bandang tagiliran ng puson ko. My tummy is still bloated, just like before ako magpaopera. Right now, nagpapainject lang ako once a month sa Ob ko para di magkaperiod, during mens period kasi nabubuo yung cyst. Nakakadepress lang knowing na one day, after the operation at all, babalik at babalik parin sya.

[crzysxycl]

^^hi sis, ano iniiject sayo once a month, depo ba? ano effect sayo ng depo?

[maman]

Hi mga sis, I had a lap nung April 2011 due to my cyst in my ovary. I was cleared from endo pero last week when I visited my OB for a check-up, may nakapa siyang endo sa uterus ko. I don't want to undergo another lap so I'm looking for natural remedies. Aside from acupuncture and guyabano leaves, what are available options for us?

[mustard]

hi sis ako ang ginagawa ko nagjuicing ako at kumakain ako ng hilaw na gulay na pwedeng kainin ...

may tanong nga pala ako , may nabanggit ba ang OB nyo about sa menopausal na side effect ng  meds. ok lang ba na hindi tayo reglahin ng matagal kahit may reproductive organ pa tayo? hindi ba lalong nakaka cancer ang ganun..

hindi ko na kasi alam ang iisipin ko...

[***blizz***]

Been an Endo sufferer for more than 3 yrs. And now my last 2 trans v shows that I also have ADENOMYOSIS. Honestly mga sis nawawalan nako ng trust sa mga OB's Ive been to 4 different OB's to think na puro specialist pa sila & one of them is the official OB of a very huge company lagi pang naiinterview sa tv. iisa lang naman ang ipeprescribe nila e either oral birth control pills or Injectable which we all know na harmful satin. or Operation na wala ding assurance na totally makakagaling satin. Nagstart ako with just 2cm cyst on my left ovary then after a few shots of DMPA naging 2 cysts na raw yung isa sa right . then after a year nawala yung isang cyst but the other cysts became 8inches. Then after 3yrs of battling & medications wala naman pala sa ovary ang cyst at healthy pala ang both ovaries ko. Yung nakikitang cyst pala is nasa tube ko. After 3yrs of spending thousands, after 9 trans v, after 4 OB's mas malala pa yung situation ko now halos di ako makatayo everyday sa sakit ng hips ko. 3yrs ago bago ako nagpa consult sobrang lakas ko pero now para nakong senior citizen sa dami ng side effects ng meds na binigay sakin.

[crzysxycl]

^aw, sobra naman yung nangyari sayo sis.
bakit ganun, sa trans v mo sa ovary nakita yung cysts tapos nasa tubes pala? Katakot naman yung mga kapalpakan ng mga OB na yan. Ang gastos gastos tapos mali mali ang diagnosis. Ano sis yung DMPA?

^^sis, yung OB ko sinabi sa akin na para nga raw mag memenopause kapag nag take ng birth control pills. pero kaya nga raw hanggang six months lang pwede itake dahil pag sumobra masama na. wala pa naman ako naramdamang iba aside dun sa pagbaba ng libido, random na hilo saka mood swings.. yung skin daw mag ddry, ok pa naman skin ko. sayo sis, ano effect? Ano pala tinitake mo ngayon for your endo?

[krispygreen]

Hi mga sis! I've been suffering din from endo for more almost 4 years na, probably longer kasi 4 years ago lang ako nagpacheck.. I had surgery and had my bilateral cyst removed last April and just like sis maman bumalik na sya, agad agad. I had transv last week and nakita ng OB ko nadon na naman sya

Sis crzysxycl sabi din ng OB ko parang yung treatment mimics menopausal kasi kaylangan ma supress yung period, since yung mens and nagfefeed sa endometriosis. I took depo din before pero sobrang nawala yung libido ko sakanya,nag spotting din ako and nagka mood swings, I took it for more than a year monthly pa kaya feeling ko sobra sobra, my previous OB didn't even advise me to take calcium supplements which is super kaylngan pala kasi yung depo injectables nakakpag weaken ng bones.

sana talaga magkaron na ng cure tong sakit nadin mga sis.

[crzysxycl]

^Aw, more than 6 months ka nag depo sis? After mo mag depo, lumiit ba sis yung cysts? Actually natatakot ako, na baka after ng depo, either walang effect or lumala pa.. Wag naman sana Ako rin may spotting pa rin. Mas madalas yung meron kesa wala. Mood swings madalas pero keri lang, libido is down talaga.. Ano size ng cysts mo sis nung first na diagnose? Sa akin almost 2cm sa left, almost 4cm sa right.   May baby ka na ba? Grabe tong sakit na to. March ko lang nadiscover na meron ako nito. Nagpa HSG pa ako August last year at clear naman lahat kaya parang nawalan ako ng pag asa biglang magkaanak nung nalaman kong may endo ako.

[mustard]

totoo yan mga sis nakakawalang gana na nga magpacheck up minsan e.. sa bawat punta ko sa ob ko puro injectable lang ang binibigay nyang meds. for may endo..   at bakit yung ibang malalang sakit nagkakaroon naman ng cure bakit ang endo wala pa,? minsan naiisip ko pinagkakakitaan nalang nila may ganitong case .. bukod sa paulit ulit ang operasyon sobrang mahal pa ng mga gamot!!!
parang hindi naman nila ginagawa ang trabaho nila hay....

sana may himalang mangyari satin at gumaling tayong lahat... pray lang po tayo!!

[***blizz***]

^aw, sobra naman yung nangyari sayo sis.
bakit ganun, sa trans v mo sa ovary nakita yung cysts tapos nasa tubes pala? Katakot naman yung mga kapalpakan ng mga OB na yan. Ang gastos gastos tapos mali mali ang diagnosis. Ano sis yung DMPA?

oo nga sis e ang mahal pa naman magpa trans v napaka uncomfortable pa. Partida pa yun sis kasi twice na OB pa mismo nag trans v sakin hindi lang basta sonologist. Kung ang Ob mismo nagkakamali what more pa kaya pag sonologist lang e ang OB sonologist buong buhay nyan puro ultrasound ang ginagawa. Depo injections yung DMPA sis. kung pumayag pala ko na buksan ako before makikita nila na wala palang problem both ovaries ko aaminin kaya nila? lagi pakong tinatakot na anytime pwedeng pumutok yung cyst e gusto ko nga pumutok na e para tapos na problem ko. kaya ang ginawa ko strenuous exercise nagtataka naman ako ala namang pumutok...

^Aw, more than 6 months ka nag depo sis? After mo mag depo, lumiit ba sis yung cysts? Actually natatakot ako, na baka after ng depo, either walang effect or lumala pa.. Wag naman sana

More than a year ako nag depo sis, 2 mos na every two weeks, then monthly then every 2 mos. Just imagine gano karaming shots received ko. E when I searched online sabi ng mga doctors from abroad dapat daw max of 4 shots per year lang ang depo or it will cause breast cancer & other forms of cancer in the uterus. E pano nalang ako na more than 6 shots a year  Whats worse is nung time na pinag rest muna ako ng OB sa shots ko mas lalong naging active yung cyst usually daw ganito reaction ng cysts sa mga ganitong treatment...e bakit yun binigay sakin? to answer your question sis yes biglang lumiit as in 2cm nalang but when I stopped sa shots biglang laki din parang mas naging active pa sya. Sis before ka pa shot ng depo check mo yung cons ayoko ng maulit sa iba yung na exp ko para akong nag pa chemo sa side effects.


[/quote]

totoo yan mga sis nakakawalang gana na nga magpacheck up minsan e.. sa bawat punta ko sa ob ko puro injectable lang ang binibigay nyang meds. for may endo..   at bakit yung ibang malalang sakit nagkakaroon naman ng cure bakit ang endo wala pa,? minsan naiisip ko pinagkakakitaan nalang nila may ganitong case .. bukod sa paulit ulit ang operasyon sobrang mahal pa ng mga gamot!!!
parang hindi naman nila ginagawa ang trabaho nila hay....

sana may himalang mangyari satin at gumaling tayong lahat... pray lang po tayo!!

that is so true sis, lahat ng naging OB ko sinabing wala talagang cure & they dont even know the cause nung disease pero ambilis nilang mag prescribe ng kung [textspeak!] anong gamot. Yung last na OB ko (as usual depo pa rin ang prescribed sakin) ask ko if hindi ba masama na mag shot uli ako ng depo e naka 9 shots nako, ang sagot nya is a big NO but when I searched online katakot takot na side effects pala possible na mangyari. Honestly parang ayoko ng bumalik sa OB mas matindi pa kasi yung hirap ko ngayon compared before I started to consult a doctor. Sana nga sis loobin ng Diyos na gumaling tayo....

[momentum]

for me naman "all quiet on the western front" ang peg ng natitira kong ovary
minsan nga nakakatakot eh kasi baka mamaya silent killing na pala ang ngyayari sa loob ko haha 
joke

I am also a sufferer ng endo pero the past years have been good to me
Basta ever since I took Althea, I was relieved of the pain. and I am dreading the day i have to stop it
Wala akong naexperience na shots shots na yan kaya I don't know what it is like

Just a little background, 2006 nung na-operahan ako, oopherectomy, my right ovary blew up to a 7cm size and had to be taken out due to endo and also because I was having UTI na and infections kasi it was pushing my bladder to the left. Actually, akala nila separate cyst yung 7cm na un, when they opened me up dun lang nila nakita na it was my ovary itself OB Oncologist pa ang doc ko nun ha, the best of the best daw, said our old pediatrician, of Makati Med. I just can't figure it out that after all the ultrasounds bakit hindi nakita na ovary ko pala un? not a separate cyst, before they opened me up?

Anyway when they opened me, they also saw that my left ovary had so many tiny cysts and also going through the same thing as my right ovary but it wasn't big, yet. He cauterized all the tiny cysts. After the operation he suggested to take contraceptive shots every 6 months to stop my period, as a band-aid solution for endo. He also explained all the symptoms I will experience if I will do those shots and I was terrified. He even said when I am ready to have a baby, then he will give me fertilization shots naman  sa loob loob namin ni mama "forget it!". I was just 21yo then.

My mom brought me to all sorts of natural alternative doctors, doing cleansing, taking naturopathic meds/supplements, so on and so forth..jumping from one doc to the other and still experiencing the same symptoms (very painful menstruation, etc). I was giving up little by little and after some time refused to go to any doctor anymore coz I told my mother it was just a waste of money.

I think I remember that the last naturopathic Doc I went to worked. His supplements were expensive, and he is all the way in Baguio, I just forgot his name. Will find out.

Fast forward after 3yrs I had a baby. And sabi nga ng docs when you get pregnant syempre since wala tayong period, wala na tayo symptoms, which is a temporary relief. Gosh it was such a relief. But of course, we cannot get pregnant every 9 months naman diba??? so after giving birth, little by little all the symptoms started to creep in again and I was back to suffering big time like nothing had changed. I went to 2 docs and both of them told me to take contraceptive pills. This was my last resort, I did not care anymore if it was against religious beliefs or what (yun kasi narinig ko sa mama ko haha), heck, I was not wanting to use it anyway just for birth control reasons, but because I was DESPERATE to relieve myself of the pain coz it was progressing so fast that 2 flanax forte tabs a day would not work anymore! So there, I took the pills and all the symptoms flew out of the window!

From time to time, on very very rare occasions I would have a bit of pain on my left side,..but goes away at the end of the day, bed rest is what I do. Other than that, no pain AT ALL. and my period is not as strong as before. Just to monitor my left ovary, I get an ultrasound every 6 months, also pap smear etc. Everything seems quiet. But just last Feb I discovered that I had a lot of cysts on both my breasts when I had my first breast ultrasound. It scared the sh!t out of me. I am due for the next ultrasound this month. Will see what has happened the past 6 months

The doc who operated me said the "best" thing for me to do now after I get off the pill on my 5th year is to use an IUD named Mirena (can only be found in the U.S). Read about good/bad side effects it gave but I think it is nothing compared to taking the shots. Another Obgyn naman told me na it's okay to continue taking the pills even after 5yrs. Hay, ano ba talaga?  Sa ngayon, I don't want to think about it muna. I'll just continue what I am doing and cross the bridge when I get there. Sabi nga rin naman my obgyn eh my endo is not the important thing now to be concerned of, but the cysts in my breasts. Hay buhay.

[crzysxycl]

^sis, katakot naman.. Ibig ba sabihin nagkaron ka ng cysts sa breasts dahil sa medications na na take mo for your endo? pinagdadasal ko nga na sana magkaanak na ako, kahit isa lang.. Pag may baby na ako, paalis ko na tong ovaries ko.. Ayaw ko magka cancer. btw sis, benign naman yung cysts mo?

^^dami mong shots ng depo sis.. Natakot ako, nakaka 4 shots na ako. parang ayaw ko na bumalik sa OB. Gusto ko lang naman magka baby, kung ibibigay ni Lord, ibibigay nya talaga.. Ganun pala yun, magiging rapid ang paglaki ng cysts after depo? Waaah.. minsan may mga namemerang OB talaga, walang concern sa patient, gusto lang nila kumita.

Mga sis, may nakapunta na ba sa inyo kay dr. Tan sa binondo? Iniisip ko kasi kung di pa umayos lagay ko, sa kanya na ako pupunta. Nakakasawa at nakakapagod pabalik balik sa OB tapos ganun pa rin. Dami rereseta tapos dami rin side effects.

[momentum]

^ not sure sis if dahil sa gamot kaya ako nagkaroon ng cysts..I actually doubt that, kasi the meds I used to take before were all naturopathic at nagdetox pa ako..so no. The only "chemical" based "meds" I am taking is Althea, that's it. I don't know what is the cause of the cysts, i have yet to find out.

Yes benign ang cyst/ovary na tinaggal sakin.
And I am thankful each day na nagkaanak ako.
Naisip ko na nga mag pa hysterectomy (option din ito na binigay ng ob ko  ) hehe kaso paano if in the future gusto ko pa magkaroon ng isa pang anak? eh no turning back na un. So, tiis tiis muna. Wala naman akong pain na nararamdaman na with my endo 

[mustard]

hi sis momentum ask ko lang 21 years old ka palang may endo kana?  so ilang taon kana ngayon? sana hindi naman maging cancerous ang nasa breast mo at madaan pa sa meds. may baby kana din pala... ask ko na din nagkaka-menstruation ka din ba kahit nagtatake ka ng pills?

baka hindi nila gaanung pinapansin ang may taong may endo ,kontinto na sila sa mga gamot na binibigay nila.. ang nabasa ko nga pwede ka din magka-cancer kapag hindi ka nagkaka menstruation e....  hindi ba ito nakamamatay ?? 

ako ngayon naka GNRH shot ako good for 6months then aftet ultrasound tapos depo nalang kaya lang parang ayaw ko na magtake bg depo kung hindi naman maganda sa katawan

minsan nga hiniling ko na sana hindi endo ang cyst na meron ako... na sana yong cyst na madali lang  mawala kapag inoperahan...