Psoriasis-- Part 2

[bonnie07]

Hi sisses! I was dignosed with Psoriatic Arthritis last march. Im 28. Sobrang sad ako nun kasi medyo in denial pa ko. Im dealing with my arthritis plus may skin rashes pa. Nagpaskin biopsy ako, guttate psoriasis yung finding. Malala yung scalp ko, im using scalpex twice a week and sebamed shampoo. Meron din ointment na inaapply pagmay lumalabas sa elbow, tummy at legs.

I'm taking metothrexate too (15mg), prescribed by my rheumatologist. It will help din daw sa psoriasis ako. May times na nagsubside sila pero never totally nawala.

Natutuwa ako sa nababasa ko na yung iba, in remission. Change of lifestyle at dapat stress free talaga. Hindi ko kasi maiwasan ang hindi mastress ngayon pero nagiging positive ako dahil sa mga comments nyo na pwede rin ako dumating sa ganong point.

[mrsonthego]

AKo naman konting spots na lang sa body, problem ko talaga sa scalp ko, ang tindi mag flakes lalo ngayon ang lamig, ang mamahal pa ng mga shampoos saka ayokong umasa sa mga medicated treatment, baka balikan ako nito in the future, dyahe lang talaga sad...

[jesrora]

Hi bonnie07,

I have the same psoar as yours. I feel you. I've had it since I was 9 years old. I know telling you do not be sad won't help a lot pero just so you know marami rin same sayo. And we get by. Anyway I did take metho for 2 years straight and then mailan ilan months on and off after . I've stopped it for 14 months now. Mahirap sa una... but I am better now. I just make sure I have 8 hours of sleep. Changed my job from a night shift one to a day shift (SOBRANG NAKATULONG TO! Feeling ko lang!), tried to lessen the stress, and ate healthy. Anyway ayun I hope you feel better don't worry hindi man mawala to as long as your family and the people you love support and take care of you and love you okay lang yan.

@mrsonthego

try 777 oil or VCO sa scalp or meron shampoo yun neutrogena inuwi saken yun aunt ko na may tar okay din sya.

[whatsmyusername]

Hi, for scalp po super effective yung ACV, pwedeng diluted sa water pero kung kaya nyo pwede ding puro, apply lang sa area every night, eto talaga nakatulong sa scalp psor ko, but coal tar shampoo is effective too, medyo hassle lang kasi ang tigas sa buhok

[rarity]

There is a good derma in St. lukes si dra erlinda garduno there was a time I had mild but visible psor sa arms and she prescribed a cream -Cream B tawag  and some oral for 15 days lang. cytobiologische I think these meds are from Europe and effective talaga cia as compared to otc drugs here.   

[bonnie07]

^^ sis saan mo nabili yung coal tar shampoo mo? Thanks!

[whatsmyusername]

^ sis, sa S&R po ako nakakabili dati, yung Neutrogena T/Gel shampoo as what other sisses suggested.. pero try mo po muna acv..

[m_lim]

mga sis, try UVB phototherapy treatment + Daivobet (basta yung red cap, may steroid)

from August 2015 until last week, as in hindi na ako makapag short sleeves na top. kahit mainit, naka long sleeves ako dahil kumalat na ang P ko sa arms and legs too!

although dati nako nakapag UVB, na amaze ako now sa bilis ng effect sa makakapal, scaly spots.

Monday lang ako nag start and 3x a week ang dose na binigay saken. 1k/ session.

nag flat at nag lighten talaga ang spots. amazing!

my derma for P pala is Dr. Frez in St Lukes QC. can't wait mag fade para makapag bihis normal na. pa summer pa naman, ang inet mag long sleeves!

[bomfalleralla]

It really helps na may support kasi like me noong una I felt very alone. Nakatulong talaga yung alam ko na hindi sya super rare na condition na ako lang ang meron. I also felt na baka kulang lang ako sa hygiene practices. Just wanted to say thanks na nag-eexist tong thread na to.

[mrsonthego]

pang 2nd use ko na ng T Gel, bakit ganun, parang lalong nag flakes, itutuloy ko ba?

[Evolet027]

pang 2nd use ko na ng T Gel, bakit ganun, parang lalong nag flakes, itutuloy ko ba?

itigil mo na [textspeak!] muan sis. Then pag mejo nag subside yugun flakes, try mo ulit lagyan. kung mag ove ulit ang flakes, you'll know na hindi sya hiyang sayo.

[mrsonthego]

sisses, true ba na psor patients qualifies as PWD, a law just approved na vat exempt ang PWD's, so kung kasali tayo, take advantage natin to!

[mrsonthego]

itigil mo na [textspeak!] muan sis. Then pag mejo nag subside yugun flakes, try mo ulit lagyan. kung mag ove ulit ang flakes, you'll know na hindi sya hiyang sayo.

oo sis, tinigil ko na muna, sayang ang mahal pa naman ng shampoo na yun, 

[vintage_blowout]

Chlorophyll powder. Mix it with your water. It has a very faint gulay taste lang. It cured my husband's psoriasis after several weeks of drinking that regularly.

[m_lim]

^where to buy?

[jecjess]

Hi mga sis. Has anyone tried "Psorifix" cream for psoriasis treatment. I saw this online and there seem to be a lot of reviews that this does work, medyo mahal at ₱ 2332 kaya I want to make sure that it really worked.
http://www.psorifixasia.com/ph_online_shop_k89_As/step2.php

[blushberry]

^^ May steroid content ba yan?

[simplykristine08]

Hello mga sis. sasali ako sa thread na to at malala na din ang scalp ko.

I cannot remember na how mine started. Meron lang akong maliit sa noo ko at malapit sa ear. Sa first visit ko palang, sabi psoriasis na daw. Diabovet works well, pero may hangganan. Dahil madalas na gamit, hindi na din umepekto after a while. Hanggang sa napansin ko, nagkakaron na ko ng flakes sa scalp. Ayun, lumala na sya ng lumala.

I did a biopsy, pero hindi naman psoriasis ang diagnosis. I've been to 3 different derma na, yung 2 sabi psoriasis, kahit daw hindi yun ang biopsy, obvious na obvious naman na psoriasis. Sinabi din sakin nung derma na depende daw sa nagbabasa sa lab ang result ng biopsy. Anyway. Kahit naman negative sa Psor ang Biopsy ko, yung doctor na nag request nun eh binigyan ako ng MTX. I took 2 tabs, pero tinigil ko kasi nagkasakit ako. Binigyan din ako ng Ionil T as shampoo. pero pagka shampoo ko today for example, mawawala. tapos maya maya, ayan nanaman.

Bumalik ako sa unang derma ko after seeing the other two. After a lot of topical creams and ointments, dahil mas lalo pang lumalala ang scalp ko, sabi ng doctor ko kelangan ko na mag take ng oral na gamot which is Cyclosporin. Eto daw eh binibigay sa mga organ transplant patients, pero pwede sa Psor patients basta maliit lang ang dosage. But, they need to do a lot of tests to check kung pwede kong itake to. At, kelangan na daw i monitor ang aking kidney every now and then. Tapos after 3 months, kelangan istop ang gamot, then rest, then back again.

Nakakastress! Feeling ko, lalo talaga lumala ang Scalp Psor ko dahil sa stress. As in, hindi natitigil ang pagkutkot ko ng flakes sa scalp, na kahit ayaw ko, bigla nalang hahawakan ko ang scalp at kukutkutin nanaman Habit na or addiciton na ata. Though, hindi naman sya makati talaga. Pansin ko, nung nagstart ako dito sa work ko, bigla akong mas naging sakitin

kelangan na talaga ng healthy lifestyle! kain ng tamang pagkain at exercise.

[Evolet027]

I used to post in this thread. Hindi naman ganun kalala yung saken pero I agree. It's in the healthy lifestyle.

Wala na or di na ult naulit yung flaky scalp at skin ko (well pasulpot sulpot na lang sya at pansin ko tuwing stressed ako sa work ko saka lang may sumusulpot) ginawa ko tong mga to:

1. Regular exercise, kahit walking or light jog
2. I take lots of water. As in. Pag meron  ata ako period saka lang ako nakaka pag soda or juice, mga hormonal kicks
3. I take 1000 mg of Vit C from healthy options or solgar with rosehips extract
4. I take chelated zinc. It's an anti oxidant and also good for the skin
5. I dont use harsh soaps and lotions. Puro moisturizing soaps lotions at shampoos gamit ko. No no ang mga whitening things.
6. Change clothes agad pag pinagpapawisan ako.
7. Most of all positive outlook.

Hubby also noticed na nawala na nga psor ko or di na ko inaatake ng malala gaya ng dati. I guess, it how we take care of ourselves talaga lalo na kung sensitive ang skin natin at katawan natin.

[mrsonthego]

^ Thank you for the update Miss Evolet027, ang tagal din natulog ng thread na to. Yun scalp ko never pa talaga nawala, try ko na mag healthier diet. Seseryosohin ko na, hirap talaga ayoko na rin gumamit ng mga steroids bukod sa mahal, pag nag stop babalik din. At higit sa lahat hirap makahanap ng derma na hindi mukhang pera. Bad trip ako sa last derma na pinuntahan ko, ng maramdaman nya na hindi ako interesado bumili ng mga "paninda" nya, medyo nagbago ang mood, medyo tumaray.

anyway follow up question sa number two. how many liters of water take mo? mga two liters lang kasi kaya ko for a day. Thanks!