Author Topic: Autism & Other Disabilities Support Thread  (Read 70567 times)

Cheesecak3

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Autism & Other Disabilities Support Thread
« on: August 02, 2011, 03:59:46 pm »
Hello mga sis!

Sa mga moms na diagnosed and kids na may autism how did you handle it?

My son has autism and diagnosed last year. He is attending OT and SPED therapy 4 times a week. Dinala ko na rin sya sa DAN Doctor and bought supplements and we are into GFCF Diet na rin.


Please share your stories mga sis...

God Bless!

Cheesecak3

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Re: All About Autism
« Reply #1 on: August 02, 2011, 04:44:26 pm »
^sis hindi ko alam kung kayang macheck yon kung inside the womb pa, kung meron man non siguro wala pa dito sa atin.
madiagnose lang yon ng Dev Pedia at sila din magsasabi kung ano ang need na therapy.

snowyice

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Re: All About Autism
« Reply #2 on: August 02, 2011, 05:06:34 pm »
yung friend ko yung son may mild autism so far okay naman sabi niya need lang talaga non stop na therapy as in don't stop unless discharge. Kailangan din ng ibang pag iintindi sa bata kasi medyo malikot talaga pero yung mga autism na kids may kakaiba silang talent ha.  ;D

Cheesecak3

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Re: All About Autism
« Reply #3 on: August 02, 2011, 05:12:11 pm »
I agree, may iba talaga na kakaiba ang talent. Ang son ko naman hindi pa sya nagsasalita at nahirapan syang express sarili nya kaya nagtherapy sya pero magaling syang magmemorize ng songs like Justin Bieber and Bruno Mars.


jay

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Re: All About Autism
« Reply #4 on: August 04, 2011, 01:41:47 pm »
my son naman was diagnosed with global developmental delay with probable autism, ang hirap kasi you see kids his age at makikita mo na delayed siya although he is into 2x a week OT.

mga sisses may mga other sources of information ba like where to get help? thanks.
May you be as blessed as I am...

Cheesecak3

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Re: All About Autism
« Reply #5 on: August 04, 2011, 01:47:22 pm »
^hi sis, ilang taon na son mo? san sya nagtherapy?

Pansin ko din na sobrang konti lang talaga ang nag oopen ng information about autism at sabi nga ng doctor na kausap ko na na some families are not open to share the experience kasi meron pa rin talaga stigma sa society ang ganitong cases.

Nakakalungkot lang kasi mas mapadali siguro tayong makarecover kung pag usapan natin eto. I am looking for conference or seminars na pwedeng mag guide sa atin pero parang konti lang at minsan nalalaman ko tapos na ang conference.

Sa kagustuhan kong makakuha ng mga information, I bought books online at yon ang binabasa ko. Madami akong natutunan talaga at hindi ibig sabihin na kapag may autism ang anak natin ay hindi na sila pwede maging normal. I think it's really possible lalo na kung magkaroon agad sila ng early intervention.

I hope madami pang parents ang magshare about their experiences para matuto din tayo.

jay

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Re: All About Autism
« Reply #6 on: August 04, 2011, 04:06:50 pm »
he is 4yrs old now, nag-start OT niya last january, he was re-assessed by a development pedia ulit last june at may mga improvements naman pero siyempre delayed pa rin hindi pa din katulad ng mga kids at his age group.

dito kasi kami sa fairview at may nakita kaming therapy center along fairlane road malapit sa NCBA. magastos lalo na't hindi naman kami mayaman we are renting nga lang pero siyempre una ang mga anak so tinutuloy pa din namin therapy niya kahit nahihirapan na, haaayz life...

sana may mga mag-share ng more info para sa atin.
May you be as blessed as I am...

chofontanilla

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Re: All About Autism
« Reply #7 on: February 03, 2012, 12:24:03 pm »
Sis ano nakita mong symptoms?

scents01

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Re: All About Autism
« Reply #8 on: February 03, 2012, 01:16:23 pm »
Oo nga yun din tanong ko..
Don't settle for less
Don't stop, don't regress
You have greater things inside
You have yet to hit your stride

ria_gelai

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Re: All About Autism
« Reply #9 on: February 05, 2012, 08:12:15 pm »
baby ko napansin ng pedia nya naman parang delayed ang speech nya at2y/o baka daw sign of autism na yun so she recommended us to see a dev ped and according to dev ped my son has a global developmental delay, so we undergo occupational and speech teherapy then after a year parang napansin ko na kaya ko naman i-therapy sa bahay kasi parang pare-pareho na ang ginagawa sa therapy kaya hininto ko, then naisip namin mag asawa na magpasked ulit sa dev ped for no reason parang to check lang kung ok na si baby then sabi ng DP why namin hininto kasi parang tingin nya lumala daw ata parang nakikitaan nya ng ADHD so sabi nya tuloy namin ang OT, now he's into OT and a socialization class  kasi parang mejo delayed sya sa ibang classmates nya in regular school but we did not stop the regular class nya...we also consulted a DAN doctor and now we are on GFCF diet, our DAN doctor is not mahigpit kasi ok lang sa kanya na minsan kung di maiwasan pwede kumain si baby ng food na usual nyang kinakain, including vitamins ni Miggy galing sa DAN doctor namin...mejo pricey ang mga food nya and vitamins pero ok na din sabi namin mag asawa para naman sa baby namin...last na just to share ha sa lahat ng doctor na nakausap namin si DAN doctor lang ang natuwa na hindi na nagmilk baby ko medyo weird pakinggan pero ok na din hehe

** sana pwede din related cases sa thread na ito, if not mods please delete my post, thanks
« Last Edit: February 05, 2012, 08:20:08 pm by ria_gelai »

Cheesecak3

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Re: All About Autism
« Reply #10 on: February 05, 2012, 08:32:36 pm »
^ang son ko meron din syang GFCF supplements from DAN Doctor. Ok naman, mas nagfocus sya. Mga 5 months na rin syang nagsupplements at madami naging improvement sa kanya. Mag 1 year na rin syang nag OT and SPED. Siguro start ko na rin syang mag speech therapy next sem. :)

janix athena

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Re: All About Autism
« Reply #11 on: March 25, 2012, 02:40:12 am »
My SIL's son (my husband's nephew) is showing symptoms of autism. He's turning 5 this year. I must admit, his quirks can sometimes make me feel uneasy. Kudos to the parents who are having to deal with this challenge everyday.

So I thought of asking for suggestions from parents/caregivers in this thread about how to properly act around a child with special needs. I found this article which was really helpful.

http://www.beliefnet.com/Health/Physical-Health/Tips-for-Dealing-with-Autistic-Children.aspx

If anyone can add more tips, feel free to post them here. Thanks so much.

Cheesecak3

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Re: All About Autism
« Reply #12 on: March 25, 2012, 02:50:34 am »
^thanks for sharing that sis.


mikaela325

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Re: All About Autism
« Reply #13 on: March 25, 2012, 01:32:46 pm »
When you're down to nothing, God is up to something.

janix athena

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Re: All About Autism
« Reply #14 on: March 25, 2012, 08:55:52 pm »
^Nice article. I learned a lot. Thanks sis!

joyce09

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Re: All About Autism
« Reply #15 on: March 25, 2012, 10:43:17 pm »
My SIL's son (my husband's nephew) is showing symptoms of autism. He's turning 5 this year. I must admit, his quirks can sometimes make me feel uneasy. Kudos to the parents who are having to deal with this challenge everyday.

So I thought of asking for suggestions from parents/caregivers in this thread about how to properly act around a child with special needs. I found this article which was really helpful.

http://www.beliefnet.com/Health/Physical-Health/Tips-for-Dealing-with-Autistic-Children.aspx

If anyone can add more tips, feel free to post them here. Thanks so much.


sis, di ba napapansin ng parents ng nephew mo yung mga signs ng autism at an early age kasi sabi nyo he's turning 5 already.  or may be the parents di lang aware of those signs na related sa autism. kaya importante talaga ang awareness about autism lalo na sa mga parents.. am sure during early years ng nephew nyo transparent na ang signs ng autism di lang siguro nabigyan ng importansya... Sis what are those quirk behavior napapansin nyo sa nephew ng hubby mo? Is he attending school?

janix athena

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Re: All About Autism
« Reply #16 on: March 26, 2012, 01:06:27 am »
^Sis in denial ang SIL ko eh (she's a single mom) and also my MIL. Yes he attends school, nursery na sya. Hay ewan ko ba kung bakit nagbu-bulagbulagan sila, samantalang everyone else is telling them na parang autistic nga yung kid. My MIL claims: Slow lang sya, but when he finds a good teacher makakahabol din. For her it's the teacher's fault na di daw natuturuan ng tama yung bata. Nung hindi nakalakad ng maayos paakyat ng stage kanina (it was their school's recognition day), kasalanan daw nung usher na hindi hinatid sa itaas. Hay. Siguro dahil sa pride nila? I feel bad for the kid for missing out on possible treatments or SPED classes.

Here are his symptoms that don't really bother me:
-he has delayed speech development, incoherent words, babbles a lot
-all of his sentences' intonation sound like he's asking a question
-he drools, with his chin perpetually dripping wet with saliva
-he's unusually clumsy, always tripping on something, not allowed to take the stairs mag-isa kasi baka mahulog
-obsessed with newspapers.
-oblivious to what's going on around him, in their recognition day kanina tayo sya ng tayo and walks around or nagsasayaw sya kahit yung mga classmates nya nakaupo.

His quirks that make me feel uneasy:

-he's too close for comfort. For example I was using my laptop sa kwarto and he would come in, sit beside me on the bed, then watch the screen, then eventually di ko na makita screen ko because nakaharang na yung ulo nya between me and the laptop. :( I don't know kung paano ko sya sasawayin, nawi-witness ito ni SIL pero hindi rin nya sinasaway. (I think she's a special child herself)
He'd then babble and spray spit on my screen and my arms, face. etc.

-Nagagawa ko lang manood DVDs when he's asleep kasi when he's awake di ko maintindihan pinapanood ko. He'd always be too near my face showing me his toys (with loud sound effects), babbling, sitting on my lap and asking me endless questions. I don't reject him naman, I talk to him soothingly, pat his back, show interest in his newspaper collection and praise him occasionally. Ayoko lang talaga kapag nababasa ako ng laway nya. Hay. And my SIL naman is oblivious din so hindi sya lagi pinupunasan.

-On our wedding entourage ginawa namin sya ring bearer (he was 4 years old), nung ceremony he was making babbling noises for several minutes, and nakuha pa tuloy sa wedding video namin that hubby was so uncomfortable and lingon ng lingon para sawayin sya.

Ayun lang for now. My husband is their breadwinner so if magpa-therapy si nephew or attend special school or explore ng biomedical intervention gastos lahat yun ng hubby ko. Ayoko man magdamot pero parang ayoko rin masyado ma-strain yung budget namin because of that, though I think maging open lang sina ILs eh they can avail of free SPEC classes naman in public schools. Di naman kasi kami mayaman.

Hay sori napahaba ang post ko. :(
« Last Edit: March 26, 2012, 01:18:29 am by janix athena »

Cheesecak3

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Re: All About Autism
« Reply #17 on: March 26, 2012, 01:27:46 am »
^sis maganda siguro kung magsuggest ka ng Dev. Pedia sa SIL mo para makapag isip din sya. Sabihin mo na delay ang development ng bata. Malay mo magising na sya.

Sa son ko naman nong napansin ko na may speech delayed sya, don na ako nagtataka. May mga behavior din sya na kakaiba before kaya mas nagduda ako.

After a year of OT and SPED therapy ng son ko, ang dami talagang improvement. This year magfocus naman kami sa Speech nya at sana tuloy tuloy lang talaga ang development nya.


janix athena

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Re: All About Autism
« Reply #18 on: March 26, 2012, 01:45:01 am »
Sis how much ang OT and SPED therapy?

Cheesecak3

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Re: All About Autism
« Reply #19 on: March 26, 2012, 02:00:01 am »
^depende sa Center sis. Sa son ko 700/hr. 4 hours/week ang required sa kanya.

 


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