Autism & Other Disabilities Support Thread

[dulcette]

^^ there is no prenatal test for ASD since hindi pa naman known ang cause ng autism, also usually medically diagnosed siya by the time a child is two years old because of developmental factors that have to be ruled out. Studies for prenatal testing only began late last year. Perhaps your stepson has another genetic condition that coincided with ASD?

[foxygirl_0215]

what do you do for kids with high sensory issue sa taste? ant tip? super picky eater ng son ko. 

[lonelymiss28]

^yup, he's got a lot of medical issues because the biological mom was alcoholic by the time she was pregnant with him.

[midphantom]

hi sisses.. share ko lang po.. my son was diagnosed with communication disorder last year..he was 2yrs then.. of course ot session ang recommend ng doctor.. but naka 2 sessions lang kame.. parang napagod kasi yung bata pati kami.. ang layo kasi nung center samin.. taga bulacan kasi kami.. sabi ko ako na lang mag turo sa kanya since sa bahay lang naman ako.. so nag improve naman sya.. nadagdagan yung words nya,pero hindi pa rin communicative,tpos sobrang likot at kulit pa.. e di nag panic na naman kami mag asawa.. we set an appoinment to another doctor,luckily we are scheduled on the next day.. sabi ko mukhang sinusuportahan ni God yung mga moves namin ngaun.. ayun.. language disorder naman ang diagnosed ngayun, and luckily ulit the doctor recommend a center na malapit lang sa amin.. di mo aakalain na center yun kc nasa loob ng maayos na subdivision and di pa sila ganun kasikat.. now my son can use 1-2 words in communicating and nasasaway na ng konti..

Sorry sisses,, ang haba.. share ko lang po na magiging maayos din ang lahat.. basta tulungan lang natin ang ating mga anak at pati sarili natin

[foxygirl_0215]

hi sisses.. share ko lang po.. my son was diagnosed with communication disorder last year..he was 2yrs then.. of course ot session ang recommend ng doctor.. but naka 2 sessions lang kame.. parang napagod kasi yung bata pati kami.. ang layo kasi nung center samin.. taga bulacan kasi kami.. sabi ko ako na lang mag turo sa kanya since sa bahay lang naman ako.. so nag improve naman sya.. nadagdagan yung words nya,pero hindi pa rin communicative,tpos sobrang likot at kulit pa.. e di nag panic na naman kami mag asawa.. we set an appoinment to another doctor,luckily we are scheduled on the next day.. sabi ko mukhang sinusuportahan ni God yung mga moves namin ngaun.. ayun.. language disorder naman ang diagnosed ngayun, and luckily ulit the doctor recommend a center na malapit lang sa amin.. di mo aakalain na center yun kc nasa loob ng maayos na subdivision and di pa sila ganun kasikat.. now my son can use 1-2 words in communicating and nasasaway na ng konti..

Sorry sisses,, ang haba.. share ko lang po na magiging maayos din ang lahat.. basta tulungan lang natin ang ating mga anak at pati sarili natin

Ang therapy 1-2 hours a day lang pero dapat continous hanggang sa house. In my story naman, I began giving home therapy to my son even before the ASD disgnosis came out. I bought him ABC/Number/Shapes puzzles. I taught him slowly and little that I know, he was a smart lil boy.. he can recognize the letters kahit ilang araw ko palang tinuro.. When my son had his OT assessment, the OT said marami na palang alam son ko na letters/numbers.. set a side time to teach your child each day.. kahit konting oras lang nagigigng malaki ang difference sa learning nila. But I will continue OT session pa rin kasi this has made a big impact oh his behaviour. He will have ST din soon.

[hopefulmommy]

Hello, everyone! This is my first time to ever join a thread because I'm too shy. Pero a part of me felt that I needed to share my experiences especially most of you have younger kids. I'm also a mom to a 10 year old boy diagnosed with ASD.

With my son, he was diagnosed at a very late age. He was already 8 years old when he was diagnosed. Of course, every parent goes through the denial stage. Imagine it took me so many years under denial before I had him diagnosed. My son's primary problem is his speech delay. Friends and relatives used to say that it's normal for young boys to be delayed in speech. So hindi ako masyado nag worry when he was still younger. Besides, he was doing so well in a mainstream school, was always included in the honor's list.

He started school when he was 4. Pero that time, ayaw niya talaga pumasok. I was forced to stay inside the classroom for 2 whole months kasi he would cry non-stop whenever I'd leave. So I thought he was not yet emotionally ready that time that's why I pulled him out. When he turned 5, he entered preschool again. And he started doing very well. Nag excel talaga siya.

But when he entered the 1st grade, parang bigla nalang siya nahuli. Medyo nahirapan na siya with the lessons and he wasn't able to communicate well. So that's the time I decided to have him diagnosed. His first diagnosis was Asperger Syndrome. Hindi ko alam why yan yung diagnosis since the main problem is speech delay. Aspies are great in language, they're even called "little professors" because they talk too much. Pero my son is the opposite. Very minimal yung vocabulary niya and limited yung comprehension. Sometimes he cannot understand simple instructions. Pero still, he went to an ST and OT, once a week.

After a year, I had him re-diagnosed with a different Devped. This time, ASD na ang diagnosis. Same treatment parin but different approach. And I'm very happy to say that he has greatly imrpoved. Although hindi parin siya yung normal 10 year old, pero he's been showing a lot of progress.

Mahirap talaga at first to accept this. Siyempre every parent wants the best for his/her child. So I was really devastated. He's my only child and I don't know if I can have another one in the future. But his condition made me love him even more. Iniisip ko nalang maybe God made him that way because He wants to shield him from all the complexities of this world. Children with ASD are oblivious so they don't get affected too much. Diba ang main goal naman natin to our kids is for them to be always happy? When my son is happy, I'm the happiest.

I hope everything will be well with your kids, too. Let's keep on giving them unconditional love because it's very important for them. 

[irismarie]

what do you do for kids with high sensory issue sa taste? ant tip? super picky eater ng son ko. 

Hi Sis! My son is not just a picky eater but does not eat solids at all. He doesn't like it and he cries whenever we try to feed him.  I read in articles that one of the causes of feeding disorders is autism. OT also helps with feeding disorders.   

[lonelymiss28]

Yung son ko he eats solid mga 7 or 8 na sya. I started sa sandwich grabe 2 hrs bago maubos. Ngayon lahat kinakain na nya.

[foxygirl_0215]

Hi sis cutemama,

Nope hindi lang speech.

3 Areas na tinitignan to be considered under ASD:
1. Speech/Language (delayed, non verbal)
2. Social Skills (impaired)
3. Repetitive movements (flapping, tip toe walking, lining of toys, stacking, stimming, etc)

Though ang Aspergers Syndrome okay sila sa language/speech pero under ASD pa rin.

During devped assessment, my son was VERY uncooperative, HIGH ang anxiety level niya. He saw him flapping too.

my son regressed when he was around 18mos old. Before that he knows all his body parts. When I ask him, point your ears, eyes, nose, tummy, etc.. he will point it. But one time I noticed he was acting differently.. he spins wheels, he would lie flat on the floor and stare at his toy car as if he is in his own little world. If you call him, he will not respond. When I tried to ask him to point his body parts, no reaction.. 

One thing that made me feel he is just fine, eye contact, he has a very good eye contact. But I read din iba iba talaga pag nasa spectrum. Meron may eye contact, meron wala.

I also noticed he does not like crowded places, he will throw tantrums. Also, he grabs my hand if he needs anything. Like I'm his tool.

 I have a 7 year old normie daughter and I recall she was never like that so gut feel din na may hindi tama. Then I saw an IG friend posted WARNING SIGNS OF AUTISM pics and there... I know he has autism. He is doing fine naman now.undergoing OT and I am happy connected agad sila ng Therapist niya. 2nd day ng OT. no meltdowns na.

I accepted the diagnosis already and I can say he is a happy child most of the time. I try to expose him to people and new surroundings para masanay. He is acting differently now. Lesser meltdowns. He responds to his name. He loves cuddles and when he is happy.. he will verbally say.."happy" 

^irismae - ang son ko naman eats solids. kaso rice, pasta, pancit, cookies, chips, lumpia. yan lang kinakain niya. pag may meat yung spag, he will remove it. I tried to change his milk to Almond Milk kaso epic fail.. I want to try GFCF kasi.

^hopefulmommy

Thanks for sharing.. We need more stories like yours. Kisses to your son.

[foxygirl_0215]

By the way mommas with ASD kids, talaga bang hindi na sinasabi ng devped if MILD/MODERATE/SEVERE ang autism? Kasi I asked my devped, she said they do not do that anymore since parents if you say MILD lang, they will not push thru with therapies

[cutemama]

 ^ganun ba sis?? Nagwoworry lang ako sa baby ko nung nabasa ko topic na to.. kasi may speech delay din siya...
Minsan din pag tinatawag hindi lumilingon lalo na pag busy pero most of the time naman lumilingon siya..
Kaya ngayon napaparanoid ako. Everytime may gagawin siya I always thought NAKU IT'S A SIGN... kaya parang namimissed ko tuloy development niya..
I asked my officemate na may baby na ka age ng baby ko 18 mos din, ganun din daw baby niya..nagsspin, tantrums and speech delay din..
It's a relief kahit papano.. observe ko pa siya kasi hindi naman siya nagttantrums,lining up of toys, spin wheels..
Sis pano mo macocompare yung hand flopping ng normal kid sa may Asd?? When to worry???..pano ba talaga hand flapping? Naghhand flap kasi siya minsan esp. Pag happy siya..

[lonelymiss28]

Yung hand flapping ng anak ko parang bye bye sign pero up and down instead of left and right saka mabilis, ginagawa nya ito pag happy, excited, nagulat sya. 

[foxygirl_0215]

Yung sa son ko naman parang ibon na lilipad pero mabagal lang. He flaps pag upset. Nanotice ko yun mga few weeks palang prior sa diagnosis.... Watch mo sa Youtube sis flapping.
 

[cutemama]

Nagsearch na ko sis sa youtube.. karamihan sa wrist yung sa son ko naman sa elbow..
Yung mga normal babies niyo ba nagfflap din? Usually ginagawa niya to pag dumadating kami ng dad niya from work..

[foxygirl_0215]

I have a friend cleared sa ASD anak niya pero still flaps until now. 7 year old na kid.
I asked her what did the devped tell you about his flapping.. she said, I didn't bother to ask.. tanggap ko na ganito anak ko.

How is he pala with other kids?

[cutemama]

^ah ganun ba? So normal din pala yun..
My baby is super friendly natutuwa siya pagnakakakita siya mga kids super nakikipaglaro talaga siya lalo na pag nasa church kami takbo ng takbo with other kids, and sa mall din lagi siya may kalaro, kahit di niya kilala lalapitan niya..super bibbo..

[lonelymiss28]

Mga sisses, since most of us in this thread are in the same boat with our kids, share na rin tayo ng mga tips based on experience, OT, PT, Doctors suggestion etc.

[foxygirl_0215]

Ang son ko kakatapos lang ng OT assessment kahapon. 1 hour inabot yung conference. The OT discussed what will be the plan for the next 6 months. Focus niya yung Sensory integration kasi ang daming sensory issues ng son ko. Lahat ata ng areas meron. Kasama din behavior modification. Praying maging cooperative ang son ko. pag okay na attention niya, we will start ST.

[lonelymiss28]

Dito sa amin tinatanong kami ng ot kung ano gusto namin matutunan ng son ko, nakakatuwa kasi may mga tricks talaga sila for easy learning. About sa emotion nila mayroong ginawa yung ot na mga faces tapos iba iba yun like happy, sad, tired, angry etc then pag nag iba mood ng son ko pinapaturo ko sa kanya kung ano mood nya so kahit di nya ma explain may idea ako.

[foxygirl_0215]

Visual learners daw kasi most kids under the spectrum the OT also suggested to name everything sa house. Para pag inutusan mo alam niya kukunin or gagawin. Need din i-demo muna if di maintindihan ang pinapagawa mo.