All about APAS (Antiphospholipid Antibody Syndrome) Thread 2

[charliesangel]

^hi sis, nagkaron ako miscarriage last 2010, after that, sabi ng OB ko magpa test ako ng APAS. it turned out na I have mild APAS kaya ako nagka miscarriage. Sa second pregnancy ko, pinatest uli ako, di na daw mild yung APAS ko, medyo nag elevate na daw kaya pina take na ko medications to save my 2nd baby.

[design21]

^ condolence sis englemamma, my ob mentioned it's not just apas you have to consider. there is a thread here ( i gave birth to an angel) woman who had still birth too days before giving birth. it has something to do with thyroid hormones being imbalanced on later part of pregnancy. Im not saying its not apas. Just consider all options. Did you have gestational diabetis while pregnant? because if your sugar is high and you are not even aware about it, stillbirth happens too.

what tests were given to you while you were pregnant? did you have congenital anomally scan?

[Englemamma]

Hi Sisies charliesangel & design21, I'm  not really sure what I got at the later part of my pregnancy with Isabel. I do have gestational diabetes that we found out only after week 32. Kasi nga Hindi na maganda feeling ko since week30 so i insisted meron problem. Sa hospital Sabi nila okay Lang ako, so I went to my midwife at week32 & then siya ang nag request na magpa-glucose test ako at dun nga nakita na may GD ako. Pero the hospital here didn't even sent the result to my midwife so dun sa prenatal check up ko pa sa week34 namin pinilit makuha result at dun pa nila sinabi na may GD ako. So after that every week prenatal ko Pero wala naman sila makita sa blood ko. But probly they are not testing me for other problems like thyroid, APAS, Ana or NK cells. Ang check Lang nila is for my blood sugar level & for protein in my urine. They have all the high tech equipments here in Norway Pero yung mga doctor dito at OB pure mga t****. Lagi Lang nila sinasabi okay Lang ako. Sabi ko hindi ako okay hang gang sa ayun na nga namatay na si Isabel sa loob ng tiyan ko.

I won't know what I have in my system or my immune system Kasi nga walang OB dito na may isip na pa-test ako. So I will have to go back to my home country para Lang ma-check ako ng husto. It's a pity coz I know in my heart that they could have saved my little angel Isabel Pero dahil sa incompetence nila namatay baby ko. We are doing IVF in Denmark, coz I refused to do any procedure again here in Norway, and when we get pregnant I'm going to the Phil's at week 30 just to make sure I'll be well taken care of our Filipino professional OBs. 

Thanks sis design21 for the condolences, we appreciate that really. I'm active in the thread I gave birth to an angel. Also found out that we don't have a bereavement experts in our hospitals there & miscarriages, pregnancy loss, stillbirth & infant loss is still an unknown territory in our country. Walang support sa mga nakunan or namatayan ng baby. I think it's unfair.

[design21]

hugs to you sis naiiyak ako for you. i lost 3 babies as well. but they did not go beyond 3 months. And now I am pregnant with twins and my ob insisted i go for high risk ob already which ai am thankful for Dra. Corazon De Jesus for entrusting me not only to her but to my endocrinologist as well. I just found out i have thyroid issues now that I am pregnant. Mine only happenes during pregnancy bec all those years of waiting for me to get pregnant routine tests na sa akin ang t3 t4 tsh tests but sadly now I am 22 weeks its present and must be treated. I only have borderline Apas thats why i dont have much knowledge about it, it used to be negative for my past pregnancies but now borderline na.

Ang hirap pala sa norway:( my sister lives in UK and she was tested naman for thyroid while she was pregnant. Ang hirap ng midwife lang talaga sa ivang countries parang last option nalang ang ob.

[Englemamma]

^thanks sis design21. Oo mahirap dito mag buntis kasi konti lang nanganganak dito so wala masyadong Experience sa obstetrics. Midwife lang palagi ang pre natal  Mo. In fairness, magaling talaga ang mga midwife dito kaya lang pag pinasugod ka na sa hospital at mag take over ang mga incompetent OB tulad ng nangyari sa akin eh by Luck na makasurvive ka or the baby. Week34 binigay na ko ng midwife ko sa hospital para maalagaan ako ng OB. Dun na lumala ang situation with Isabel. Sana pala umuwi na lang ako Pinas instead baka nabuhay pa si Isabel.
I believe mas magagaling ang mga OB sa UK. They are one of the best in Europe. Your sister has better option in UK than me here in Norway.
Im on my way now to Denmark for egg retrieval tomorrow Monday & embryo transfer on wednesday. Cross fingers they get lots of eggs & all will be fertilized. And sana maging success ang ivf.
Big hugs to you sis design21

[prettynvain]

^ hi sis... ano symptoms mo sa gestational diabetes? ila weight ba ginain mo? pre-pregnancy and during pregnancy? thanks

[Englemamma]

^ hi sis prettynvain i gain 10kilos total during pregnancy its like 1 kilo a month gain ko. I was a stable 65kilos for 4 years white ttc so no dramatic increase in weight while ttc. I guess mas prone ang women in 40s sa GD so I was expecting ill get it. And I always have big babies, my first baby Nina was 4.3kilos (9.5 lbs) when she was born & Isabel was born 3.6kilos (8lbs). Carrying big babies can lead to GD, but I can also say I will get big babies coz I have Norwegian hubby. Chain reaction na sis dami rin factors that lead me to get GD.
My symptoms are mild at first, yun thirsty Ako all the time. Later at week 30 nahihilo Ako Parati which is unusual for me until I fainted na sa office.
Are you worried you'll get it? I suggest you get tested at week 20 & week 24 para maalagaan ka kaagad. Boring Lang may GD kasi regulated talaga diet mo para Lang iwas insulin. I was only on diet regulated GD.
Good luck! Big hugs!

[prettynvain]

^yup sis.. kasi i was 129lbs pre-pregnancy pero kasio thru diet yan eh.. months before nasa 159lbs ako tapos i was able to lose 30lbs in 2months, pero it was HCG diet with blood-type diet kaya di siya yung bad diet.. kasi puro veggies, protein din naman ako, nagless lang talag ako sa carbs.. i was able to enjoy almost 2month ng pagging slim.. then now i am 13weeks nasa 162lbs na ko.. sabi ng ob kasi nagrebound daw yung dati kong weight kasi biglang stop ako sa diet ko, dapat nag-maintenance muna ako.. kaso lamon ginawa ko. haha..

now naman, sobrang bilis kong magutom.. malaks din ako mag-rice.. ang nakakainis pa kakakain  kio lang ng rice after 1 hour gutom na naman ako.. pag pinipigilan kong kumain naman di mapakali tong tyan ko kaya need ikain talaga.. di umuubra ang crackers! dapat bread sa snacks! my panganay is 7.8lbs.. dahil nga sa laki na ng tinaba ko kaya nagwoworry ako.. di naman pwede mag-diet pa daw.. pero kasi mahilig ako sa malamig kasi super init ng pakiramdam ko kahit autumn na dito.. kaya yung tyan ko malaki tignan for 3mos.

sabi ng ob ko he can't test mo pa for GD eh.. maaga pa daw masyado, kasi yung dizziness pwedeng normal lang eh.. yung anmun every other day ko tinetake kasi i know nakakalaki yun..

[design21]

^ its never too early i was tested for gdm at 8 weeks negative pa then at 17 weeks positive na. My ob is a perinatologist high risk pregnancy ob good thing nadin kasi pro active sila hindi bali na madaming blood tests safe naman ang baby. I was also on cohen diet orior to getting pregnant and during my early weeks i have to retain my diet plus i had hyperemenesis. there is a thread here for gestational diabetis. It is also good to have congenital anomally scan once positive for gestational diabetis.

I do believe nasa pagdadala ng good ob ang safety ng mothers well of course maliban sa disiplina ng mother while pregnant. And here in Manila, when you have gdm, hindi ob mo magmamanage kung hindi endocrinologist.

[prettynvain]

^thanks sis. i'll ask my ob tom sakto check-up ko.. i have 2 ob's kasi.. private saka yung sa hospital na papanganakan ko.. sa hospital doctor first visit nung first week ng oct. may mga blood test na pinagawa.. sa 30 ko pa malalaman resulta..

[Englemamma]

Sis prettynvain I agree with sis design it's never too late to be tested. Kung pwede naman pala nila gawin early why not do it soon.  It's really good that you have 2 OB. Sigurado maalagaan ka.
In my case I dropped my private OB. Kasi every check up I pay 1,500 kroner or 10,000pesos. Namahalan ako so I just dropped her & just continued with my midwife. Sana pala I didn't drop her.
I totally agree ang Hirap mag diet ang buntis! Hehe...ang style ko lagi snack ng peanuts, raisins & fiber cereals like every 15mins nasubo Ako ng snacks. I put them in small bags tapos dukot Lang ng dukot.
Sometimes I mixed them in non fat yoghurt with a teaspoon of strawberry marmalade, pampalasa yun ang pang tawid ko ng mga main meals
But na worry naman Ako sa laki ng gain mo 30lbs & you're only 13 weeks.  Please do check with your OB  about that. Good luck with your appointment tomorrow!

[Englemamma]

Sis design Congratulations with your twins pregnancy! I couldn't remember greeting you so I'm doing it now! We're they conceived through ivf? I'm praying for your smooth full term pregnancy & delivery of healthy babies. Do you know the gender? I'm having my embryo transfer tomorrow & cross fingers 2 embies will be good to transfer. Will keep you updated!

[design21]

thanks englemamma! im praying for the success of your ivf. No mine wasn't ivf natural conception but monitored ng reproductive ob i was just given clomid. But bEfore i had failed IUIs. No one wanted me to have IVF because I can get pregnant but sustaining it was my problem. Kaya i was tested several times for Apas. I guess the quality of my egg before was so poor because the dosage my previous ob gave me was already for IVF but i had abandoned cycles primarily because my egg wont grow enough to rupture. Im having one boy (100%) but the other one both sonologist thinks its a boy also but not yet confirmed so i just assume 2 boys. It could always be a girl  they are fraternal.

Sis nashock ako 10k for check up? Hay umuwi ka na lang nga next time. It's so costly there! Wala ba insurance?

[Englemamma]

^ sis design it s a private clinic kasi  & experienced OB kaya 10k pesos per visit. Yung midwife & public OB ang sagot ng govt health insurance, eh yun nga puro mga newbies at students ang nasa OB sa public hospitals kumukuha Lang experience & then nag private practice na sila. Puro bata mga doctors na OB  sa public feeling ko tuloy grandma na ko during check up time with them. Namahalan nga Ako dun sa private OB ko kaya on week 12 lumipat na ko sa midwife & public OB. imagine Kung 15visits with private OB the whole pregnancy eh di inabot 150k pesos eh pampaanak na yun sa st.lukes or Asian...hehe.
Got the call from the ivf clinic today, tuloy ang embryo transfer at 1 egg Lang out of 6 nakuha ang nafertilize. At least I have one. It only takes one . Hopefully BFP Ako this first ivf try.
Ang galling naman nakuha sa clomid twins mo! I'm so excited for you Sis! Double happiness kaagad! It's true not all ivf medications works for every woman. Yung iba not responding others are overstimulated.
Btw, what medications are you taking now to control your apas? Who is your OB, pwede mo ba pm clinic niya & hours? Thanks sis in advance!

[prettynvain]

^ sis, 10k per visit din ako sa private ob ko.. i prefer na may private bukod dun sa gov't ob na provided ng hospital na pag-aanakan ko.. sa gov't ob kasi matagal ang interval ng check-up eh madami ako concerns palagi kasi nga ivf so iniisip ko baka iba yung symptoms palagi than natural conception.. i told my ob about that.. i looked perfectly fine naman daw.. pero if i want to be tested sa GD on my next check-up ko na lang daw.. he told me naman nag-rebound yung weight ko kasi nga di naman daw ako nag-maintenance ng diet.. ang diet daw kasi laging may maintenance period.. abruptly i stopped daw kaya ganun.. sana daw inunti-unti ko pagkain di lamon agad.  kasi tumakaw talaga ako ng husto ngayon eh.. pero bp's and others ko normal naman.. he told me if di ko kaya mag-bawas ng rice, brown rice or red rice na lang daw or i-mix ko ang white at red.. yung pag-lose ko kasi ng 30lbs dati in 2 months time ko lang ni-lose eh..

[purpleangel11]

            Hello mga sis.. I was advised by my OB Dr.Aguillar to have this immuno test...me mga allergies kc ako..masyado daw hyper ang immune system ko..baka ito daw cause kung bakit almost 5 years na di kaya di me nabubuntis....Eto po mga test...KCT..DRVVT..APTT..Anticardiolipin IgG. Anticardiolipin IgM..me idea ba kayo sis kung how much ito ngayon sa PGH? salamat po sa sasagot..

[design21]

update lang mga sis:

1) Apas at PGH needs 4-6 hours of fasting ( i dont know why) buti nalang hindi pa talaga ako kumakain sa takot ko katrigger morning sickness while in transit

2) Apas panel alone is P 6,410

3) Same padin ang cut off nila Tues, you can get the results on Friday the same week

------------------------------^ ako nagpost nito months ago paki backread mo nalang

[purpleangel11]

                                                 Thanks sis design21

[Englemamma]

Sis design may idea ka ba Kung sa Asian Meron silang particular day na itest ka for apas? I will try to get tested here too on all of these test sis puprleangel11 mentioned.

[breadbox]

            Hello mga sis.. I was advised by my OB Dr.Aguillar to have this immuno test...me idea ba kayo sis kung how much ito ngayon sa PGH? salamat po sa sasagot..

hi sis! nag-inquire din ako May this year sa pgh thru phone and they told me same thing as sis design21 posted. but when i decided na to have the test this august lang, my apas test was P5,666.75 only and release of result is two days after, so i got mine on a thursday. i dont know kung 2 ba lab tests dun. ang pinuntahan ko is fmab building. parang new building sya for paying patients, bagong bago pa kasi yung hitsura nya.