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Author Topic: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2  (Read 76624 times)

supermomwannabe

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #40 on: May 30, 2012, 09:37:00 AM »
@ sis Santa Maria yes, i think, sis charliesangel is right. aspirin is safe for APAS babies to address the issue of blood clotting. normal pregnant women are not advisable to take it since their blood flow is ok, no clotting. as for side effects on the baby, i think, it is little or none and is negligible. APAS moms have healthy babies. successful APAS moms can prove that. unfortunately, i am not yet one.  but i will be. hehe... just have faith in your doctors and God.

i also took folic acid, calcium plus vit D, aspilet EC, duvadilan/isoxuprine for pain as uterine relaxant (mine was 3x a day), my progesterone was duphaston during my 2nd pregnancy, during my third was utrogestan (2x orally and 2x vaginally). i did not took omega 3 fatty acid. my dosage varied with every ultrasound. treatments are unique of pregnancy cases.

@ sis m_lim my manifestation was blood clot also called subchorionic hemorrhage which was seen via transvaginal ultrasound at 6th week. i have been very photosensitive. i also experience headache. pero those are not conclusive, unless blood testing and an indication like clotting nga.

@ sis chico ang mahal na pala ngayon ng apas panel sa pgh. what more kaya next year when i will repeat my test? last dec 2010, i paid 4k, charity na yun. ano-anong tests sya, AcaIgM, AcaIgG, DRVVT, APTT at KCT pa rin ba o may na-add na?
ob history
2009:2hrs alive;25wks;PPRoM;CSdelivery
2010:w/hearbeat@6-10wks;w/SCH;MC@11wks
2012:14days alive;31wksIUGR;on aspirin,innohep,steroids,2cycles of IVIg,etc.;CS
+KCT,DRVVT,AcaIgM,AcaIg,ANA,Anti-DSDNA,rho,SSa,ATA
ok NK&TSH
plan TTC2014;monthlyIVIg

charliesangel

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #41 on: May 30, 2012, 09:53:21 AM »
^sis supermomwannabe, i admire your strength and faith. You are always included in my prayers.
Sobrang dami mong naitutulong samen dito sa forumn. May God grant the desires of your heart.

heaven sent

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #42 on: May 30, 2012, 02:26:14 PM »
@sis supermomwannabe  - thank u for ur advise. keep on giving us advise 

@sis charliesangel -  sis may i know who is your ob gynae

charliesangel

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #43 on: May 30, 2012, 08:21:50 PM »
^sis, si dra chiaoling sua-lao ang OB ko. Di ko na daw kelangan immunologist kasi kaya nya na ihandle yung mga APAS categories na meron ako.. Tapos dr herbert ho ang endocrinologist ko for my blood sugar..

Santa Maria

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #44 on: May 30, 2012, 08:53:49 PM »
Sis charliesangel and sis supermomwannabe thank you so much for the assurance. At least mas panatag na ko ngayon.  :)

charliesangel

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #45 on: May 30, 2012, 09:30:17 PM »
Sisses! I need your opinions:) kasi mejo Naguluhan ako sa sabi ng ob ko..sabi niya after my laparoscopic operation,Hindi na raw ako pwede mag conceive naturally,dapat daw iui or Ivf na due to pid...when I visited her after 3mos,sabi niya to try to conceive naturally na Lang muna daw then if Hindi kami na conceive saka na kami proceed to iui and ivig(5 immunological problems daw pinakyaw ko:( ) sabi ko sa kanya bakit iba suggestion niya last time? She told me na kahit anung gawin namin andyan nman daw risk ng ectopic..what do you think mga sisses? Magpapreggy na Lang ba muna ako before ako pa treat ng immunological problem ko? I'm taking folic acid,thyrax,calcium,aspirin and conzace. May ibang ob na natanungan ko ng case ko at lahat nagsabi na Hindi daw ako pwede iui,Ivf or try naturally na Lang daw. And saka na treatment after I get preggy..maraming salamat in advance sa mga sasagot!! Probi pa ako kaya I'm sure Tagal bago to  mapost..:)

Sis gelynbalantac, nice to hear from you again.

APAS category 123 lang kasi ako, kaya di ako maka comment. Mahirap kasi yung may NK cells na category. Sa point of view ko, try to obey your OB, if you're not comfortable with her, try to change OB para mas panatag ka. Pero sa ngayon kasi mahirap na humanap ng OB na naghandle ng APAS and at the same time infertility doctor na malawak na ang experience.




supermomwannabe

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #46 on: May 30, 2012, 09:36:19 PM »
Sisses! I need your opinions:) kasi mejo Naguluhan ako sa sabi ng ob ko..sabi niya after my laparoscopic operation,Hindi na raw ako pwede mag conceive naturally,dapat daw iui or Ivf na due to pid...when I visited her after 3mos,sabi niya to try to conceive naturally na Lang muna daw then if Hindi kami na conceive saka na kami proceed to iui and ivig(5 immunological problems daw pinakyaw ko:( ) sabi ko sa kanya bakit iba suggestion niya last time? She told me na kahit anung gawin namin andyan nman daw risk ng ectopic..what do you think mga sisses? Magpapreggy na Lang ba muna ako before ako pa treat ng immunological problem ko? I'm taking folic acid,thyrax,calcium,aspirin and conzace. May ibang ob na natanungan ko ng case ko at lahat nagsabi na Hindi daw ako pwede iui,Ivf or try naturally na Lang daw. And saka na treatment after I get preggy..maraming salamat in advance sa mga sasagot!! Probi pa ako kaya I'm sure Tagal bago to  mapost..:)
@ sis gelynbalantac while i thought, pinakyaw ko na lahat ng repro-immuno categories, hindi pala. parang i read your post on the other forum, ivf or iui or lit ata yun. kinukwento nga kita sa husband ko. you also have thyroid issue? antithyroid antibodies? im glad you're taking conzace. im taking it too. and you're taking aspilet EC ba? aspirin and folic acid are preparations for getting pregnant. you have all these meds naman as precautionary meds to protect the baby in case you conceive. bakit daw hindi ka pwede ng ivf or iui, because of the risk of ectopic pregnancy? how young are you, sis? ok lang if you don't want to answer. i, too, am not sure of how i will answer your question "Magpapreggy na Lang ba muna ako before ako pa treat ng immunological problem ko?". i guess, kung di ka naman nagmamadali, try to conceive muna naturally. i've read an article by lisa gokongwei-cheng at smart parenting mag, i think may 2011 issue entitled "my long journey towards motherhood". accupunture helps daw to balance our mind and body. the rest will follow.

mga sisses, im replying as if im successful na, im not. im just buying time kasi you never know how much strength you, all, are giving me. :)
ob history
2009:2hrs alive;25wks;PPRoM;CSdelivery
2010:w/hearbeat@6-10wks;w/SCH;MC@11wks
2012:14days alive;31wksIUGR;on aspirin,innohep,steroids,2cycles of IVIg,etc.;CS
+KCT,DRVVT,AcaIgM,AcaIg,ANA,Anti-DSDNA,rho,SSa,ATA
ok NK&TSH
plan TTC2014;monthlyIVIg

gelynbalantac

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #47 on: May 30, 2012, 09:58:20 PM »
Hi sis charliesangel:) nag muni muni muna ako bago magpost ulit hehe:) tama ka sis,Hindi lahat ng ob nag handle ng apas case..Babalik ako next month sa ob ko I'll ask her about my plan..Sana pumayag hehe:) thank you so much sis:)

gelynbalantac

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #48 on: May 30, 2012, 10:30:42 PM »
Hi sis supermomwannabe:) sa lit ako nagpost nun:) tinalo kita sis sa immuno problem ko hehe:) meron din akong anti thyroid anti bodies..nagtataka nga ako sis bakit pataas ng pataas yung anti tg ko e..before 100+ then after ng ectopic ko 500+ then last two weeks ago nagcheck ako 600+ na..I don't know Kung dahil ba sa thyrax yun e..33y/o na ko sis..pwede daw Ivf pero iui Hindi daw according sa Ibang ob na natanungan ko dahil sa Ivf Hindi nman na daw dadaan sa Fallopian unlike iui at baka raw ma ectopic again..sis nagpapaccupuncture na rin ako hehe Kay sis liu,pangalawang  beses ko na kanina:) every week daw ako punta sa kanya..sis aspirin aspilet Lang nkalagay e,hnd ko alam Kung ec yun hehe..I'll tell my ob next month kung ok Lang na Hindi na muna ako iui,yun kasi plan niya,try ko muna mag conceive naturally even without lit or ivig..:) thank you do much sis for replying:)

supermomwannabe

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #49 on: May 31, 2012, 09:10:17 AM »
@ sis gelynbalantac :) bata ka pa naman. how long are you married na? my antithyroid antibodies are overwhelming; 7000plus 'yung antithyroid peroxidase at yung isa 500plus ata, ang natatandaan ko kasi yung 7k. cat 2 and 3 lang ata ako, based on my record, pero ang tindi ng apas ko, sa 1st, 2nd and 3rd trimesters umaattack. usually kasi 1st lang, kaya pag nalampasan yung 1st tri, malaki na ang chances of live birth sa healthy baby. good thing, i don't have a problem on conceiving pero masakit pa rin, bakit pinapaabot pa ako ng 6-7months tapos kukunin din. lahat naman masakit mawalan ng loved one o kaya hindi magkaron ng chance na magkababy. that is why i feel for everyone, hindi natin macacategorize 'yung degree ng pain, pare-pareho lang.

hey, from north ka? maghahanap pa rin ako ng nag-aaccupuncture dito sa south at mag-iipon. how much ba ang fee ng accupuncturist?

may you and your husband be able to conceive and deliver a healthy child. :)
ob history
2009:2hrs alive;25wks;PPRoM;CSdelivery
2010:w/hearbeat@6-10wks;w/SCH;MC@11wks
2012:14days alive;31wksIUGR;on aspirin,innohep,steroids,2cycles of IVIg,etc.;CS
+KCT,DRVVT,AcaIgM,AcaIg,ANA,Anti-DSDNA,rho,SSa,ATA
ok NK&TSH
plan TTC2014;monthlyIVIg

pink_blush01

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #50 on: May 31, 2012, 09:20:47 AM »
hi mga sis, i feel worried and lost this time. This is the first time I reached 21 weeks. Last 2 weeks, @19weeks, i had my doppler u/s, values are normal but there are occasional notching in the left and right arteries. My placenta is still grade 1 at that time. And Yesterday @21 weeks, Baby is doing great, normal sized baby, amniotic is good, but placenta is slightly maturing. Doc said its grade 2 already. After googling  placental maturity, I freaked out and can't think of anything else but worry. I will be having my doppler u/s again after 2 weeks. Sabi ni doc, what we can do is to prevent other parts of the placenta to mature, may part kasi ng placenta na matured, and some are still grade 1. What we can do daw if may notching pa rin is to increase heparin dosage or worse is mag ivig or intrallipid.

Alam niyo mga sis, at this time parang nag g-give up na ko but when I remember how fascinating it is to see baby growing inside me and feel him and I know he wants to survive as well. I know, I'm trying everything I could for him, and this time I'm leaving everything to God. I can't stop crying while I type...
♥  God listens ♥

charliesangel

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #51 on: May 31, 2012, 09:30:44 AM »
^hang in there sis pink_blush.. God is gracious.. I will cOntinually pray for u. Think Of other happy thoughts, imagine mo hawak mo na si precioys baby mo. Baka makasama sayo yung stress.. We're here to give you moral support sis.. Hang in there.. Lets pray for your doctors also, to give them knowledge. Hugs sis.. Fight fight tayo, never lose hope..

pink_blush01

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #52 on: May 31, 2012, 09:39:51 AM »
Thanks sis, kelangan ko lang talaga malabas yung takot ko, kasi hindi ko sinasabi pa sa asawa ko (OFW) I dont like him to worry, sasabihin ko siguro anytime this week, nagiipon lang ako ng strength para hindi ako umiyak while telling him. I want to be strong for the three of us.

Sabi naman ni doc, baby's weight is on the 69th percentile, so very good daw yun. btw mga sisses, san part ng tummy kayo nagiinject ng heparin sabi ni doc, di daw ako nag follow instruction anpagalitan pa ko, masyado daw mataas yung ginagawa ko I can do harm to my intestines  :'(
Kaya kagabi, kahilera ng navel yung pininch ko, kaso nag bruise siya konti kahit may ice.
♥  God listens ♥

charliesangel

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #53 on: May 31, 2012, 09:44:55 AM »
^sis sa taas ako ng pusod pina inject ng OB ko. May mga pasa din kahit may cold compress. Pag di na daw kaya i pinch, pede sa thighs, pero sobrang magpasa sa thighs, sobrang dark kahit may cold compress kaya tummy lang ako ngayon.

Ilabas mo lang sis takot mo, we're here to listen.. After nun, think of other happy thoughts.

pink_blush01

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #54 on: May 31, 2012, 09:53:59 AM »
^ I think medyo ok na ako, kasi simula kahapon, sinasarili ko lang to. wala ako kinukwentuhan nakakabaliw pala yung ganon hehe. Sis nung mga 20-21 weeks mo, sobrang magalaw na ba si baby like gaano katagal sa isang oras?

♥  God listens ♥

heaven sent

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #55 on: May 31, 2012, 10:04:13 AM »
@sis charliesangel - thank u sa reply re your ob.

@ pink_blush01  - im on 22 weeks na ... me time na magalaw si baby .. me time na hindi .. and ive noticed na lagi siyang sumisiksik sa right side ko .. doon me bukol .. i dont know if head yun or siko . re inject ng heparin -  sa taas na din ng pusod ako kasi takot ako baka matamaan si baby .. but i read dito sa girl forum na its safe daw at hindi naman matatamaan si baby ... but just to be on the safe side  sa taas ng pusod inject .. and you are right me pasa nga

charliesangel

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #56 on: May 31, 2012, 10:15:52 AM »
^^sorry sis nalate ng reply, nagheparin kasi ako :)
Sa pagkakatanda ko, nung 20th week ko, oo magalaw na sya nyan pero pasaglit saglit lang, like 5-10 mins. Di ko masyado ma estimate ganu katagal sis.. Baka under or over yang estimate ko.. Hehe.. Si baby mo? Magalaw naman di ba? Kausapin mo sis.. :)

« Last Edit: May 31, 2012, 11:09:43 AM by charliesangel »

pink_blush01

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #57 on: May 31, 2012, 11:14:54 AM »
mas magalaw siya ngayong 21st week namin, kasi sa umaga may na f-feel na ako na konti galaw, sa lunch konti, mga 4pm ayan ang kulit na niya, then sa gabi ulit. may araw nga lang na hindi masyado magalaw, kaya kinakantahan ko twinkle twinkle mukha naman type niya hehe.

sakin din e, minsan parang may something na sumisiksik sa tagiliran ko, si baby ba yun akala ko constipated lang ako.
♥  God listens ♥

charliesangel

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #58 on: May 31, 2012, 11:28:56 AM »
no prob sis heaven sent. Happy to help :)

@sis pink_blush: hehe kinakantahan mo ng twinkle twinkle.. Ang cute.. Basta magalaw sis, ok yan si baby.. Strong yan :) di ba baby?

Mga sis, gawa tayo FB group? Hehe kung gusto nyo lang. Wag naten i public, i-PM lang naten link para walang bogus girl talkers na sumali. Exclusive lang for GT members under APAS threads :) Kung ok lang sa inyo. Meron kami sa 3rd quarter babies and its fun! :)

pink_blush01

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #59 on: May 31, 2012, 11:32:29 AM »
sige sis! game
♥  God listens ♥

 

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