Author Topic: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2 (Read 20708 times)

wat_evah · « **Reply #240 on:** November 25, 2012, 03:09:54 pm »

hi sis mishka08, if i'm not mistaken if may elevated category sa apas.. yes apas na, ang treatment naman is aspirin.. kung lahat ng categories elevated ang treatment, aspirin with heparin shots and steroids..

mine was kct & ptt only pero my immunologist gave me aspirin and if pregnant na with heparin shots.. hth!

charliesangel · « **Reply #241 on:** November 25, 2012, 11:14:02 pm »

Sis barbiebaby28, pwede mag breastfeed kahit nag heparin sis

ako breastfeeding since birth ni baby up to now. Nagheparin ako since first trimester up to manganganak na.

Sis ttc#2, i feel for you sis. Baka meron affordable na OB sa PGH na expert din sa APAS. Ang importante, makapag ka test muna para malaman kung anung caregories meron ka if ever para makapag suggest ang OB ng treatment for you. Maganda kausapin mo din si OB and sabihin mo situation mo at baka may ma suggest pa syang iba.

mishka08 · « **Reply #242 on:** November 25, 2012, 11:45:23 pm »

Thanks sis wat_evah! Ganon pala yun. Naka aspirin naman ako now. Na anticipate na siguro ng OB ko. Pero need ko pa din to see an immunologist. Super thanks ulit! God bless!

barbiebaby28 · « **Reply #243 on:** November 26, 2012, 02:01:53 pm »

sis charliesangel,thank you.akala ko kasi di pwede breastfeed pag nag heparin.kawawa naman si baby pag ganun.

sis ttc#2,medyo mahirap talaga financially ang ganito apas case. pero we have to try our best para mag ipon to find ways to cure this and to possibly prevent losing our future babies. kaya kahit hirap kami ngayon we are doing all we can. ang sakit kasi pag hirap na nga makabuo,tapos mag miscarry pa ulit.
aside from treatment that we are seeking,all these problems has led us closer to God. maybe God really is very creative in finding ways to lead us closer to him and for us to seek a deeper relationship with him. we have faith na one day soon,makukulitan din si God sa mga prayers naten at ibibigay na din nya healthy babies naten.
by the way,is it normal ba na magkaron ng pasa sa lower legs pag naka aspirin?

mizizlim · « **Reply #244 on:** November 26, 2012, 10:08:38 pm »

can't believe im back in this thread!

share ko lang story ko mga sis, i'll try to make it short.

lost baby#1 in 2008, no heartbeat at 7 wks. i went through several unsuccessful IUIs after that. Until in 2011, i got tested and treated for APAS. I had my LITs in Sept 2011, and successfully got pregnant after an IUI in December. We were so happy because finally, after 3 years nabuntis ako ulit though through artificial means na talaga! Sadly, i still lost my 2nd one in Feb, never developed a heartbeat upto the 7th week til it was declared a non-viable pregnancy.

that was my turning point na, my ultimatum. sabi ko no more work ups after this. after all, i'm already 35 and we've done our best, pero maybe it wasn't meant to be talaga.

which is why it came as a surprise when i found out that i am pregnant! no work ups, no treatments! i never thought i'd get pregnant spontaneously because of our history nga. now i'm almost 8 weeks, and our little one is performing well.

heartbeat na sya agad at 6 weeks, and as of our last scan...naging stronger pa sya and nawala na subchorionic hemorrhage ko!

so sana magtuloy tuloy na talaga ito, this time.

aside from all the meds, prayers ang tinututukan ko ngayon.

So mga sis, don't lose hope! dadating din ang babies nating lahat, most probably at a time when we least expect it.

ttc#2 · « **Reply #245 on:** November 27, 2012, 02:44:59 pm »

sis barbiebaby28, thank you for your kind words.

gusto ko pa magtry ng isa pa bago magAPAs test kasi siguro in denial pa ko.. pwede kaya ako magtake ng baby aspirin kahit walang prescription?

sis mizizlim, nakakainspire ang story mo. sana soon makabuo na din kami kahit hindi pa ko nagpapaAPAs test. i wish you a happy and healthy 9 mos. sayo na yan talaga sis. keep us updated. ask ko din may tinetake ka bang vitamins even nung nagstop ka magwork ups? im taking omega 3, folic acid, vit c now hoping na makabuo din naturally.

cUddLY · « **Reply #246 on:** November 27, 2012, 03:29:39 pm »

Hi mga sis!

I took home IVIG meds from my ivf in Taichung and i was wondering where can I have it administered / infused here in Manila?

I called Health Cube and they didn't seem to even know what IVIG is. And when they called back, sabi nila they can't administer it coz they don't have the "pump" which I mentioned was used in Taichung. Does anyone know who to talk to at Health Cube, if they actually do IVIG there?

barbiebaby28 · « **Reply #247 on:** November 27, 2012, 08:06:54 pm »

hi sis ttc#2, i think it is best if recommended ng doctor before ka magtake ng aspirin. Kasi I have been reading about it at madami pala ito interactions with other vitamins. Like me, one week na ako nainom aspirin then i noticed i'm having bruises on my legs, yun pala dahil un sa iniinom ko din na fish/salmon oil. Bawal pala pagsabayin un within the day, kasi naeenhance ng fish oil un effect ng aspirin so hyper thinning ng blood ang nangyayari kaya ako nagkapasa. Nun mabasa ko un article about dun, tinext ko un immunologist ko, tas un sabi nya folic lang daw ang ok na kasabay inumin ng aspirin. wag ko na din daw inumin muna un vitamin E ko. At un iron supplement ko, wag na din daw muna kung di rin naman ako anemic.

mizizlim · « **Reply #248 on:** November 27, 2012, 10:04:20 pm »

sis ttc#2 - no supplements even vitamins wala! kasi nga di ko na iniisip pa mabuntis. what i did was to exercise a lot. really focused on losing weight.

at nagpaganda ako! i had a makeover, etc. hehe. basta sabi ko i will focus on myself lang muna and feeling good and looking good. ayun na!

though as soon as i found out im preggy, inom ako agad aspilets and folic even before i went to my OB.

ttc#2 · « **Reply #249 on:** November 28, 2012, 01:17:35 pm »

sis barbiebaby28, thank you sa info, medyo nakakatakot pala. siguro wag muna ako mag aspirin hanggat walang sinabi ang doctor..

sis mizizlim, wow I really believe na gift yan sayo ni God. Sana next na din ako. My husband and I also decided to stop TTC muna after ng sunod sunod (though may monthly gaps) na nangyari sa akin. Ectopic, missed miscarriage at etong very recent na chemical pregnancy. During the TTC process nga na to e tumaba ako. I think I need to lose weight and to stop thinking about TTC (though it's easily said than done)

barbiebaby28 · « **Reply #250 on:** November 28, 2012, 03:16:10 pm »

mga apas sis na nabuntis na before, when kayo nagstart mag inject ng heparin? like what week within the pregnancy? umiinom pa din ba ng aspirin kahit naka heparin na?

mizizlim · « **Reply #251 on:** November 28, 2012, 03:43:10 pm »

sis ttc#2, i also gained a lot of weight while trying. kasi i didn't want to exercise kasi baka matagtag. or on days that i crave, i give in to the cravings kasi baka buntis na ako so iniisip ko i had to eat. so mga ganyan mentality, di ko napansin na ang laki ko na pala!

so gradually, i started a healthy lifestyle...eating properly and exercising regularly and i lost a lot of weight nga.

sabi nga ng OB ko, maybe that's one of the reasons why i got pregnant spontaneously because of the weightloss.

sis barbiebaby28...i started injecting heparin by my 2nd consultation with my immuno after i got the results of all my tests. that was on my 6th week. and yes, continuous din ang aspirin on top of the heparin injections.

marose17 · « **Reply #252 on:** November 28, 2012, 03:50:15 pm »

@mizizlim, I am so happy for you. I remember you from the previous thread.

I'll pray for you and all our APAS sisters here in GT.

I read something about heparin and breastfeeding. I breastfed my babies while on heparin, fyi.

imloveholic · « **Reply #253 on:** November 28, 2012, 07:43:45 pm »

Hi mga sisses! kakavisit ko lang kahapon sa ob ko para iparead yung result ng apas test ko...sabi niya normal naman daw lahat, meaning no need to undergo heparin shots pero need to take folic acid and aspirin...pinapupunta niya ako sa immunologist partner niya para matest din daw kami ng husband ko, next step daw yun, ano po kaya test ang gagawin sa akin? yun ba yung LIT o ano ba usually ang test na ginagawa ng immunologist? thanks po... sana po maenlighten ako, medyo naguguluhan pa kasi ako sa ganito e sunod lang ako ng sunod sa pinapagawa ob ko, believing that she knows best.

barbiebaby28 · « **Reply #254 on:** November 28, 2012, 09:51:45 pm »

hi sis imloveholic. ito un mga test na pinagawa samin after my miscarriage.

1.primary immuno deficiency panel 1 or PID1
2. apas panel
3.protein c and protein s
4. donor blood screening-for husband
5. tissue crossmatch-husband and wife
6. TSH

bbmelove · « **Reply #255 on:** November 29, 2012, 01:43:34 pm »

Hi Ladies, I'm new here...hope I'm welcome to join the thread

@ Ms ttc#2- Hi hope my past experiences on my pregnancies could help somehow...stay positive..God will see us through...

@imloveholic- Hi I could relate to you when I had my previous OB consultations and dami gusto ipa-test...but there are instances when APAS can be very controllable since it cant be cured...Actually, once you have a history of APAS you will have to undergo the same tests repeatedly on every pregnancy...dont worry too much...I had the same tests too with Ms barbiebaby28..those are really special Repro immuno tests..there's a new lab specializing in Reproductive Immunology in Katipunan, called Bloodworks they test all that..it was endorsed to me by my Repro Immuno doctor, Dr Aleta. Who is your Repro Immuno now?

skylar-ddm · « **Reply #256 on:** November 29, 2012, 08:55:53 pm »

Quote from: cUddLY on November 27, 2012, 03:29:39 pm

Hi mga sis!

I took home IVIG meds from my ivf in Taichung and i was wondering where can I have it administered / infused here in Manila?

I called Health Cube and they didn't seem to even know what IVIG is. And when they called back, sabi nila they can't administer it coz they don't have the "pump" which I mentioned was used in Taichung. Does anyone know who to talk to at Health Cube, if they actually do IVIG there?

Sa Madocs and pgh pwede pero dapat may doctor na mageendorse sayo for admission and at the same time magsupervise/administer ng infusion. You can go to dr.abong, my previous immunologist. Yung mga nurses dun sanay na rin sa procedure ng infusion. Sila na magseset up ng infusion pump ang ng dose na prescribed ng doctor mo. Hth...

mizizlim · « **Reply #257 on:** December 11, 2012, 05:23:21 pm »

hi girls, ask ko lang if ang innohep ba talaga ngayon is wala nang nabibili ng naka-vial? my doc kasi prescribed na i change from heparin leo to innohep para 1x a day na lang ang injection ko. pero sa mercury daw kasi pre-filled syringe na lang sa kanila and around 450 daw per syringe. super mahal naman!!!

or baka naman may kilala kayo na medeep nito so i can get direct? tia!

pretty_wife · « **Reply #258 on:** December 12, 2012, 09:04:44 am »

Try other mercury branches. Sa edsa shang baka meron pa. I'm taking 0.3ml once a day innohep. 2ml vial is around P1500. and my husband checks several mercury branches if out of stock.

mizizlim · « **Reply #259 on:** December 12, 2012, 11:54:47 am »

thanks sis pretty_wife! i called muna and meron nga sila stock.

sabi kasi dun sa branch na pinuntahan ng hubby ko, all branches daw nila dont carry the vials anymore!

yun pala meron pa din, and they can order for the customer daw if needed. 1 week advance notice lang kailangan nila.

same goes with south star drug, they can order daw for the customers pero with 50% downpayment.

hay salamat! akala ko hindi ako makakahanap e!

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Author Topic: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2 (Read 20708 times)