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GIRLTALK

Author Topic: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2  (Read 58919 times)

supermomwannabe

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #20 on: May 24, 2012, 10:23:25 am »
@sis charliesangel nothing to worry about. consistently naman you're mentioning magalaw si baby. i think it is very important. at tama ang size sa ultrasound. tuloy2x na yan. two weeks more, viable na talaga si baby. magpapalaki na lang ng husto sa tummy ni mommy.
ob history
2009:2hrs alive;25wks;PPRoM;CSdelivery
2010:w/hearbeat@6-10wks;w/SCH;MC@11wks
2012:14days alive;31wksIUGR;on aspirin,innohep,steroids,2cycles of IVIg,etc.;CS
+KCT,DRVVT,AcaIgM,AcaIg,ANA,Anti-DSDNA,rho,SSa,ATA
ok NK&TSH
plan TTC2014;monthlyIVIg

charliesangel

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #21 on: May 24, 2012, 10:38:07 am »
^^sis pinkblush, nangyayare din saken yan minsan pero bumabalik din sa normal font.

^sis supermomwannabe, headache nga ang side effect, naglagay ako ng 10pm, tapos at 3am nag-throw up ako sa sakit ng ulo, parang binibiyak ulo ko sa sakit. 3x ako nag throw up until morning. I texted my OB, and pinainom ako biogesic. After ko tanggalin yung patch, medyo nag subside yung headache ko. Titiisin ko na lang for my baby. Thanks!

kayemom2010

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #22 on: May 24, 2012, 10:54:53 am »
@supermomwannabe, I gave birth to Kaye Nica at exact 34 weeks age of gestation. She was only 1.1kg when she was born, very small since at 34 weeks pag ala intrauterine growth retardation normal weight of a baby is nasa range na ng 2-2.2 kg. My little fighter fought till 7 days old but she eventually succumbed to infection because she was preterm and very small for her gestational age.. To say na I'm very devastated is an understatement kaya i understand what our sisters here feel when a baby is lost, ala kapantay iyong pain tsaka iyong fear that I will not be again given the privilege to be a mother in this earth.

Naghandle kasi sa akin during my first pregnancy was a regular OB and that's when I realized na important perinatologist o OB na nagspecialize sa high risk pregnancy maghandle sa mga APAS na katulad ng case natin. So one of the things i'm thankful for is i was able to find my good doctors because they became instrumental na matupad iyong pangarap namin na magkababy.

Dr Aleta also mentioned to me about IvIg. That was when in my doppler ultrasound a notching on the left intrauterine artery was seen but we compromised that before we use IvIg she opted to increase my innohep dose instead from 0.3ml to 0.5ml once a day, after 2 weeks a repeat doppler showed the notching was done so we continued innohep in that dose till i gave birth..


arielle

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #23 on: May 24, 2012, 12:57:23 pm »
hi kayemom2010.Congratulations!  nasa last thread pala yung announcement mo nung nanganak ka, how's your new baby. 

pregnant APAS sissses, hang in there, relax lang, in time kayo naman mag-aannounce ng delivery nyo. I'm praying for all your safe delivery ,no complications!

supermomwannabe

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #24 on: May 25, 2012, 09:15:33 am »
@sis kayemom thank you very much. my toughest 490grammer at 29weeks lived for 14days, also due to infection, necrosis ng intestine since she was too small to tolerate feedings. inspite all the meds, increased innohep dosage from 0.35 to 0.45 to 0.9ml, ivIg, etc. i guess, the baby is just not ours. again, congrats. please update us of our baby's development. continue inspiring us.
ob history
2009:2hrs alive;25wks;PPRoM;CSdelivery
2010:w/hearbeat@6-10wks;w/SCH;MC@11wks
2012:14days alive;31wksIUGR;on aspirin,innohep,steroids,2cycles of IVIg,etc.;CS
+KCT,DRVVT,AcaIgM,AcaIg,ANA,Anti-DSDNA,rho,SSa,ATA
ok NK&TSH
plan TTC2014;monthlyIVIg

Santa Maria

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #25 on: May 26, 2012, 08:44:14 pm »
 :D Hi sisses! Surprise!   ;D I'm six weeks pregnant! Pati kami ni hubby na surprise kasi Hindi pa oras. Feb 15 lang ako nakunan... Nakakatakot pero sabi nga I should be thankful... Every child is a blessing. Check up ko last week sabi ng doctor since borderline apas ako treat Nya as apas patient na... Binigay Nya sakin gamot and vits: folic acid, calcium, omega 3 fatty acid, aspilets (once a day) duvadilan, duphaston, (4x a day yung last two). Ganyan din ba treatment sa inyo?

First ultrasound ko sa Thursday. Balik ako sa doctor on Friday.

charliesangel

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #26 on: May 26, 2012, 09:21:44 pm »
Sis kayemom, thanks for sharing. Sana kami din maging successful.

Thanks sa support mga sisses!

Sis santa maria, congratulations!
Same tayo multivitamins pero wala ako omega3, aspirin din everyday, pero yung pampakapit ko is progesterone instead of duphaston duvadilan.


chico

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #27 on: May 28, 2012, 10:00:02 am »
Pauwi na from uppgh, madali lang basta maaga dumating sa MRL, malayo nga ang cashier pero carry lang. I paid P6410 for the test, friday pa result, sakto kasi saturday naman ang check up ko.

gano kadaming blood ang naiextract sa inyo mga Sis? Tsaka tinanong ako kung nagfasting ako, sakto kasi maaga kami nagdinner last night at di kami nagbfast bago punta ng pgh, so unintentional fasting ko pero naging ok naman.

charliesangel

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #28 on: May 28, 2012, 10:15:31 am »
^thanks for the info sis chico.

Pag nagpapatest ako, usually 2 vials kinukuha saken. Depende ata sa mga tests na nakalista sa request.

m_lim

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #29 on: May 28, 2012, 10:17:57 am »
may symptoms ba ang APAS? im on my 7th week palang.

charliesangel

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #30 on: May 28, 2012, 10:27:23 am »
^Hi m_lim, sa bloodtest lang sya nadedetermine. Ang parepareho lang kami is may mga previous miscarriage kami, that's why we were subject to APAS test. Also, sa early stage, I remember, on my 9th or 10th week, may nakitang blood clot sa placenta ko thru ultrasound.

m_lim

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #31 on: May 28, 2012, 12:31:26 pm »
^thank you sis. first pregnancy ko kasi kaya lahat bago sa akin. :)

babymeow04

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #32 on: May 28, 2012, 01:27:55 pm »
^if i remembered it correctly, during sa checkup ng sister ko. pregnant na dapat before makapagpa-check ng APAS..blood chem type na laboratory.

APAS yung sister ko, she's 7 weeks pregnant pero baby is 1 week smaller than usual (ok lang ba un?)  :'( hayyy sana maka-survive siya.. we've been waiting for 7 years  :'( :'( :'( may injection si sister twice a day sa tummy...

arielle

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #33 on: May 28, 2012, 06:35:14 pm »
^if i remembered it correctly, during sa checkup ng sister ko. pregnant na dapat before makapagpa-check ng APAS..blood chem type na laboratory.

APAS yung sister ko, she's 7 weeks pregnant pero baby is 1 week smaller than usual (ok lang ba un?)  :'( hayyy sana maka-survive siya.. we've been waiting for 7 years  :'( :'( :'( may injection si sister twice a day sa tummy...

sis no need to be pregnant first before APAS test. mas ok nga bago pregnant makita na dahil nakakapagadvise na doctor magtake ng aspirin to prepare the body

heaven sent

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #34 on: May 29, 2012, 08:40:13 am »
hello mga sis ...
im a newbie but i;ve been lurking this site since the day 1 of my pregnancy .. i am also an apas patient.i am soo thankful in this site bec ive learned soo much about apas and how to deal with it .
at the present i am 20 weeks pregnant .. im under doctoc aleta and  my current ob is doc gilda gelmar martinez .. im in delimma mga sis .... im planning to change ob for the reason  doc martinez doesnt like doc aleta and she prefers doctor eduard lim as my immunologist .. but  when i called up doc lim office  wala siyang clinic so that;s the reason i went to see doctor aleta up to now... any experience/feedback good and bad ke doctor joselito santiago?  and also any experience/good and bad feedback with doctor gilda martinez? gusto ko lang makasiguro if tama ang decision ko to change ob or stick with her .. many thanx and hope to hear from u all soon

supermomwannabe

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #35 on: May 29, 2012, 11:51:49 am »
@sis heaven sent at 20weeks, do you feel the baby moving? just a thought, if the baby is really ours, whoever our doctors are doesn't matter. they are only God's instrument. makulit ako saying, let's just continue praying for them to be granted with wisdom for our proper and most appropriate management unique for each of us and each pregnancy.

@ sis babymeow04 at 7th week, i think, baby's size is negligible. within 2weeks discrepancy is acceptable. how inspiring, your sister has been waiting for this baby for like 7years! successful na yan, with a lot of prayers.
ob history
2009:2hrs alive;25wks;PPRoM;CSdelivery
2010:w/hearbeat@6-10wks;w/SCH;MC@11wks
2012:14days alive;31wksIUGR;on aspirin,innohep,steroids,2cycles of IVIg,etc.;CS
+KCT,DRVVT,AcaIgM,AcaIg,ANA,Anti-DSDNA,rho,SSa,ATA
ok NK&TSH
plan TTC2014;monthlyIVIg

Santa Maria

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #36 on: May 29, 2012, 03:17:08 pm »
hi sisses!
thank you sis charliesangel! but worried pa din ako... safe ba talaga ang baby aspilets? ang dami ko kasing naiisip like abnormalities etc. minsan nagdalawang isip akong mag take... :'(

gelynbalantac

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #37 on: May 29, 2012, 03:31:20 pm »
Hi sis heaven sent:) Kay doc Martinez din ako before..magaling naman siya kasi 2 office mates ko na napabuntis niya isang 5 and isang 7 years waiting. Pero lumipat ako ob kasi Hindi niya na detect na ectopic na ako akala niya chemical pregnancy..si doc lim Lang talaga gusto niyang immuno..mahal kasi doc lim pero dami good reviews sa kanya dito:)

gelynbalantac

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #38 on: May 29, 2012, 03:41:35 pm »
Sisses! I need your opinions:) kasi mejo Naguluhan ako sa sabi ng ob ko..sabi niya after my laparoscopic operation,Hindi na raw ako pwede mag conceive naturally,dapat daw iui or Ivf na due to pid...when I visited her after 3mos,sabi niya to try to conceive naturally na Lang muna daw then if Hindi kami na conceive saka na kami proceed to iui and ivig(5 immunological problems daw pinakyaw ko:( ) sabi ko sa kanya bakit iba suggestion niya last time? She told me na kahit anung gawin namin andyan nman daw risk ng ectopic..what do you think mga sisses? Magpapreggy na Lang ba muna ako before ako pa treat ng immunological problem ko? I'm taking folic acid,thyrax,calcium,aspirin and conzace. May ibang ob na natanungan ko ng case ko at lahat nagsabi na Hindi daw ako pwede iui,Ivf or try naturally na Lang daw. And saka na treatment after I get preggy..maraming salamat in advance sa mga sasagot!! Probi pa ako kaya I'm sure Tagal bago to  mapost..:)

charliesangel

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Re: All about APAS (Antiphospholipid Antibody Syndrome) Thread 2
« Reply #39 on: May 29, 2012, 07:17:18 pm »
Sis santa maria, aspilet is necessary for APAS pregnancy. Di naman magrerecommend si OB ng makakasama saten especially to our babies.

Mga senior APAS sisses, correct me if im wrong: Aspilet has something to do with our blood flow, since we have excessive clotting of blood. Blood clotting is bad for fetus, since the arteries or veins papunta sa kanila is so small na dapat diluted ang blood ng mother para continuous ang supply.

Pag di kaya ng aspilet lang, papasok na ang pag inject ng blood thinner like heparin.

Hope this helps.

 

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