Author Topic: Lymphocyte Immunization Therapy (LIT) Thread 2 (Read 15183 times)

abel823 · « **Reply #40 on:** January 18, 2012, 09:41:41 pm »

wat_evah,

usually ata ang first donor mo talaga husband mo... pag di nag work saka get ng iba donor.
base naman sa na research ko dito mas effective ang donor iba tao kesa asawa...mas tumataas ang score ng Lat. Yan lang napansin ko.
since may cough and colds hubby ko di pa pwede mag donor, at nag hahabol din kasi kami time kaya 2 session agad at one week lang pagitan.

Kayang kaya natin yun injection parang kagat lang ng langgam, hinga lang ng malalim pag inject na. as advise by sis Ida, nakakatulong sya maalis pain.

pink_blush01 · « **Reply #41 on:** January 18, 2012, 10:13:04 pm »

^at konting galaw galaw ng paa para madivert attention sa sakit :p hehe

jhoanne11108 · « **Reply #42 on:** January 18, 2012, 10:54:07 pm »

http://www.facebook.com/photo.php?fbid=10150283667713137&set=a.10150281085258137.327974.580083136&type=3&theater
(this the result of my 1st and 2nd LIT)

http://www.facebook.com/photo.php?fbid=10150324262873137&set=a.10150281085258137.327974.580083136&type=3&theater
(ito naman yung pang 4th)

Sis [textspeak!] evah, ano nangyari nung nilagyan mo ng ointment?

Sis mommyontop, yes kagaya sya ng skin test kaso maraming skin test depende sa makukuhang lymphocyte. Kaya naman yung sakit basta isipin mo para sa magiging baby mo, ako nga since bata pa ako takot na takot ako sa injection as in super tapos ayun nga LIT 4 na session pa plus twice a day inject ng heparin.

Regarding naman sa donor, ang explanation ni Dra. A sa amin is dapat talaga si hubby ang donor mo kasi kasama yung blood nya sa magbubuo ng embryo so dapat talaga makilala ng immune system mo yung blood nya. Then yung sa donor naman its the same lang kaya lang ito super foreign ng blood kasi never pa syang nakapasok sa body mo unlike hubby's blood, according to Dra. A mas ok daw yung mix, hubby + donor kasi mas maiimune yung sytem natin sa foreign things which is good para pag nabuntis tayo hindi na nya iaattack si baby as foreign or kalaban ng immune system natin.

Sa akin pala 1st LIT was hubby's blood then 2nd from a donor sa MEL then 3rd hubby ulit tapos yung pang 4th yung booster shot ko donor ulit. So far ok naman yung result.

mommyontop · « **Reply #43 on:** January 19, 2012, 01:59:05 pm »

super takot din ako sa mga injections na yan, but na-carry ko naman un na cs ako sa 1st child ko, then last year naman yun na-dnc ako, hubby was trying to be so brave kanina, 10vials of blood was drawn from him, sabi nya masakit daw, and now a few more hours left and ill have my 1st lit na, wish me luck

mommyontop · « **Reply #44 on:** January 20, 2012, 10:23:22 pm »

its been a day since my 1st LIT, and now im feeling the itch in the bandage, what to do then?

abel823 · « **Reply #45 on:** January 21, 2012, 10:18:06 am »

Question lang mga sis...

I had Ana test sa mel at negative.
Pinaulit ni dra abong sa asian...and result Positive.

Kala ko Lit lang kelangan ko....pero sabi sa akin kelangan ko mag IVIg pa...alam ko mahal yun di pa namin na discuss mabuti sa tuesday pa.
so problem ko is Lat , cd19 and cd 20 and a positive Ana test.

Will discuss with her about intralipids kung meron sya kasi mahal sobra ata yun IVIg...any info how much yun IVIG? kelangan na ba talaga yun di pa naman pregnant , will have IVF end of March pa.

abel823 · « **Reply #46 on:** January 25, 2012, 11:30:32 am »

Had my 2nd Lit injection with ( 1 donor and hubby).
Meron pa kami ulit next week ( 1 donor and hubby).
almost 90k na din yun 3 session na yun. then wait for a month to check if tumaas na.
Sana nga mataas na agad.

about IVIG, since meron naman sa taiwan at masmura doon na lang kung kelangan talaga.
masyadong mahal kasi yun IVIg dito. Depende din sa lab result sa taiwan kung kelangan talaga.
Di na ako mag pa stress sa IVIg na yan. dahil butas na bulsa ko sa Lit pa lang.

Refer to IVIG thread for the price sa taichung.

mommyontop · « **Reply #47 on:** January 25, 2012, 11:44:38 am »

sis bakit umabot ng 90t un lit sessions mu, ang mahal naman, kelangan ba 2 donors per sessions, aggressive treatment ba ginawa mu or are you preggy?

abel823 · « **Reply #48 on:** January 25, 2012, 11:48:46 am »

Oo aggressive treatment kami.
Jan 17 2 donor
jan 24 2 donor
jan 31 2 donor

kaya almost 30k yun per session ko.
habol kasi kami sa end of march na IVf sa taiwan.
Para sure din tumaas na.
then after one month ata ang Lat ko.

mommyontop · « **Reply #49 on:** January 25, 2012, 05:46:46 pm »

magastos talaga, i had my first un 19th but one donor lang si hubby, then baka next tues again i'll have my 2nd LIT with different donor, just had my d&c last nov 2011 land din kasi so we decided to have it every other week instead, i hope maging successful na ivf mu

abel823 · « **Reply #50 on:** January 25, 2012, 08:16:07 pm »

Quote from: mommyontop on January 25, 2012, 05:46:46 pm

magastos talaga, i had my first un 19th but one donor lang si hubby, then baka next tues again i'll have my 2nd LIT with different donor, just had my d&c last nov 2011 land din kasi so we decided to have it every other week instead, i hope maging successful na ivf mu

Sa mel ka din ba mag pa Lit? kay Dra abong?
if same tayo doc magkikta tayo for sure.

Thanks sana nga at tumatanda na ako.

mommyontop · « **Reply #51 on:** January 26, 2012, 09:15:22 am »

no im under dra aleta in st lukes, un 1st immu ko is dr ortigas, soooo don't like him, heard so many not nice feedbacks about him kaya lang my ob referred me to him so i went to see him once which he requested me to take apas test, kaloka naman kasi pinakuha niya lahat, pati un tests na pinapadala sa US which most told me na not necessary naman, so i paid for almost 57,000+, then when i went back to let him read the results super late pa siya, ang pf niya ay grabe

soozan · « **Reply #52 on:** February 02, 2012, 09:40:22 pm »

hi! i just had my 3rd LIT (donor, since my husband is under medication for boils

, hindi daw sya pwede mag donate) under dr. aleta at st. luke's last jan31. we were 6 LIT patients! i came with my mother, at ang tanong nya, bakit lahat daw ng lumalabas sa clinic ni dra. ay naka bandage?

next LIT will be on feb14, husband ulit donor. dra. aleta recommend dra. meguizo (st.luke's qc) as my OB. Dra. meguizo said to try IUI (since naka-4 IUI na kami prior to LIT), kung wala pa daw, IVF (under Victory ART or St. Luke's Global). Sabi nya 250-300k daw. hindi ko naman natanong kung all-in yung price na yun. na-shock kasi ako, oo lang kami ng oo ng husband ko.

we're still hoping na kaya ng natural or IUI.

babydust to all of us!

mommyontop · « **Reply #53 on:** February 03, 2012, 05:49:41 pm »

sis soozan, navisit mna dra debbie? nag iui procedure din ba sya?

soozan · « **Reply #54 on:** February 06, 2012, 01:58:07 pm »

Quote from: mommyontop on February 03, 2012, 05:49:41 pm

sis soozan, navisit mna dra debbie? nag iui procedure din ba sya?

hi sis mommyontop! i first visited her on her clinic at st.luke's qc, prescribed femara and aspirin. then returned after 5 days sa delos santos clinic nya. maliit pa daw follicles (for natural method muna), kaya pinapabalik nya ko after 33 days yata. pero nagka-boils nga si hubby, kaya d na ko bumalik muna. next cycle na lang daw. sayang kasi ang bayad sa injection and sa ultrasound.

yes, nagpe-perform din sya ng iui, sa victory din yata or sa st lukes global. depende kung san gusto ng patient.

sa kanya ka din ba?

mommyontop · « **Reply #55 on:** February 06, 2012, 03:55:53 pm »

yep, after my d&c i went to see her, pero haven't started working up with her, d kasi ako hiyang with clomid and femara, and that make me thinking to try iui with her, sa delos santos may ultrasound machine siya?

jiffy · « **Reply #56 on:** February 10, 2012, 02:08:12 pm »

Hi mga sis! just to share.. I just got my LAT results and 100% na PRA ko sa wakas after 4 sessions from 0%. Gusto pa sana ni doc na 2 sessions pa daw ng LIT but i insisted na magtest muna since i have this gut feel na ok na ako and Thank God my instinct was right.

zoe_girl18 · « **Reply #57 on:** February 10, 2012, 03:51:58 pm »

Hi mga sis! I have been lurking in this site for quite some time now & I have finally decided to share my story to you guys. I'm not sure if I am posting in the right thread pero here goes.

My history: Married 2001
Start of work-up: 2002 (clomid, Hysterosalpingogram, several failed IUIs)
1st pregnancy: 2003 (blighted ovum)
Immuno testing: 2003 (Cat I, II, IV, V)
Other tests/procedures: Laparoscopy for Endo stage II, severe PCOS
Treatment: LIT, IVIG, Prednisone, Heparin, Aspirin (the works)
Result: several failed IUIs & 2 failed IVFs (done in Singapore)

To make the long story short, walang nangyari. I don't want to sound obnoxious pero sa lahat lahat ng nagastos naming mag-asawa I could have built a house, seriously. But we did not mind the financial factor, we worked hard instead para matustusan ang expenses. But the most painful part is the emotional & physical pain that we had to endure.

Fast forward to 2007, our 2nd IVF procedure. Husband & I decided that if it still does not work out, we will move on with our lives & accept the fact that maybe our destiny is to really not have a child.

After the failed IVF I went through all the grieving stages, anger, depression, self pity, etc. ( i know all of you can relate to this). Until I reached the final stage, ACCEPTANCE.

I realized that life is not about having a child or not. Having no children does not make me less of a person. Naisip ko, I did not marry my husband just to procreate. I married him because I want to spend the rest of my l with him. & if we do have a child/children, bonus na yun sobra. I did bt blame God, kasi naisip ko i have so many blessings in life. Good health, loving family & friends, shelter, food, a wonderful husband, pano pa ako aangal? parang ang selfish ko na nun.

Moving on, hubby & i decided to live our life to the max. We traveled when permitted. We took up mountain biking. We surrounded ourselves w/ people who care & love us & who do not judge us for not having children.

Fast forward again to 2012. I found out I was pregnant. No work ups, no medications, etc. As in lahat wala. I found out Jan 3. Grabe the best new yr's gift na natanggap namin. I am now almost 11wks pregnant.

What I learned from all of these: that God is really great. I am not a super religious person pero this truly is a miracle baby. In God's time talaga, everything will fall into place. I have to be honest, I am scared almost every day. Scared that something might go wrong. In short PARANOID. But I am embracing this pregnancy. Binigay na ito ni Lord w/o me asking so I know para sa akin na talaga to.

Mga sis, don't lose hope. Wala pala talagang imposible kay Lord. I read this somewhere:
GOD answers prayer in 3 ways:
HE says YES & gives you what you want.
HE says NO & gives you BETTER.
HE says WAIT & gives you the BEST EVER.

I continue to pray everyday that everything will go well. & I will pray for everyone here who are in their journey to having their own miracle baby soon.

Ang haba na ng post ko, I will create another one kasi I want to share what I have learned so far in this pregnancy.

Prayers & Baby dust to all.

zoe_girl18 · « **Reply #58 on:** February 10, 2012, 04:28:45 pm »

Hi ulit mga sis,

When I found out was suddenly pregnant, 2 thoughts crossed my mind:
#1 fear - with my previous history & blighted ovum super takot ako baka maulit ito
#2 confusion - should I go to another OB / Repro-Immuno or stick w/ the old ones.

Honestly speaking, I love my OB. Super kampante ako sa kanya as in i fully trust her. Kaso she would only want to work w/ 1 repro-immuno which is not the easiest doctor to work with. Pero naisip ko, since this is a surprise pregnancy, I wanted doctors who have a clear history of my work-ups & case kasi mahirap magsimula sa zero lalo na pregnant na ako. & I know that my repro-immuno is very aggressive so I decided to stick with them.

Had my routine check ups: 1st ultrasound ko I was only 5wks4days so wala pang heartbeat. My repro-immuno had me re-tested for LAT, KCT, APTT, DRVVT, NK Panel, THI1:TH2 cytokine ratio.

Result: hello.. lahat bagsak.. LAT 0, KCT, APTT, DRVVT ang tataas, NK mataas. TH1 & TH2 lang pasado.

2nd u/s at 6wks, baby has a heartbeat na! (yey!) after ng u/s na yun derecho na ako sa Madocs for IVIG(why?) this is to create immediate protection kay baby since 0 (balut) ang LAT. After 2 days LIT na agad. husband + 3 donors.

FFwd: after 2 weeks, had my LAT re-checked. 100% agad! Isn't God great? di ako makapaniwala. Pati si OB nagulat.

had my 2nd round of LIT nung Feb 1. still husband + 3 donors. (why?) this is to create a more permanent & stronger protect for the baby.

Since I have been backreading sa mga posts nyo, may mga napulot ako sa mga co-patients & sa mga doctors ko na hinde ko nabasa dito that I would want to share. In the hopes that I could help those who like me, e ang daming tanong pa rin until now. I think this applies to patients who have APAS & NK cells.

I forgot to mention mataas ang NK ko CD19cells, CD5+, meaning nasa uterus ko naka concentrate ang mga NK. (bad NKs!!

)

1. Subchorionic hemmorage - hinde palagi ibig sabihin nito nag bl tayo. this can be an indication na ina-attack na ng NK cells si baby.

2. IVIG gives temporary protection to baby habang hinde pa 100% ang LAT natin. pero the protection lasts for 3wk to 4wks max.

3. yung LIT natin, may ibig sabihin pala ang mga reaction nito. pag maga-maga sobra ibig sabihin very strong daw ang activity ng NK cells sa uterus natin.

4. NK cells can trigger APAS daw. so meaning minsan na-aggrevate ng NK cells ang APAS natin.

5. ako daw mas more of NK ang problem ko kasi yung APAS ko na-re-regulate naman with heparin & aspirin alone.

6. sa 1st tri natin, very active ang NK weeks 8 & 12. sorry wala pa akong idea sa ibang tri but I will ask.

7. watch out na yung CRP is dapat negative & yung ESR di tataas. & yung platelet natin di bababa.

8. as early as pag-implant pa lang ni baby sa uterus natin, nag-atttack na ang mga NK cells. which means na yung placenta is compromised agad lalo na sa mga katulad ko na walang prior work-ups for protection. e impt pa naman ang placenta sa pagdeliver ng oxygen & food kay baby.

from my latest blood work, my CRP became positive from negative & tumaas ang ESR ko. meaning may inflammation na nangyayari sa katawan ko. I am 11wks na so malamang eto na yung papasok ng 12wks na high ang activities ng NK.

Sabi OB ko kanina, sa tingin nya I will be asked to have another round of IVIG to downregulate my positive CRP & high ESR. I'm seeing my repro-immuno later to get the final verdict.

I have to admit scared na naman ako. pero I am keeping my hopes up knowing that God is good all the time & He alone is my healer

Prayers to all

P.S.
pag may naalala ako i-post ko ulit. minsan kasi ang daming sinasabi ng mga doctors nakakalimutan ko din..

jhoanne11108 · « **Reply #59 on:** February 10, 2012, 05:01:51 pm »

sis zoe_girl, thanks sa pag share ng story mo.

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Author Topic: Lymphocyte Immunization Therapy (LIT) Thread 2 (Read 15183 times)